June 2003-December 2003
 



Melanie and Jon Moore are putting together a video of greetings for Ross. If anyone in the Boston area would like to be on it, please email Mel at [email protected] .

If you're not in the Boston area but would like to be a part of the video and can send a taped message, Mel said they'll be happy to add it. Contact her first, though, so they'll know to expect your greeting.

Please note: This information comes from Ross's family. It is based on my understanding of what I'm told. I apologize if I have misinterpreted any of the facts given to me, and will try to keep everything as factual as possible. If you have any comments or questions, please write to me at [email protected].


December 4, 2003 9:45 PM--Just a brief note to let you know that Ross had a good day, slept a lot (They wore him out yesterday!) and had a good session on the tilt table. I'll be gone until Sunday, so will fill you in on how he's doing then.Yesterday marked 18 months since Ross was injured. He's come so far, yet still has a long way to go. In the meantime, please keep Ross and his loved ones in your thoughts and prayers, and thank you so much for your support and good wishes.

December 3, 2003 8:15 PM--We all know how competitive cyclists can be, but Ross's latest is proof that even a life-threatening injury can't dampen that spirit. One of the most difficult therapies Ross has is to lie on his stomach and hold his head up. His mom said he hates doing it. His best time was two minutes, thirty-five seconds, followed by a forty-five second lift. That was five days ago. His dad decided to put the timer where Ross could see it. Today, he held his head up for four minutes and eleven seconds, took a brief rest and then held it up for four minutes and thirteen seconds. He's dealing with goals now, and it's obvious he's focusing his energy on beating them, but Betsy said he is very definitely watching the timer. If there's any doubt about his cognitive abilities, that should lay them to rest.
     He's doing well in all his various therapies, from focusing on "yes" and "no" cards on command to his time on the tilt table. His advances are coming at a greater rate, now, and it's really exciting for me to call Betsy for the evening report.
     I want to thank all of you again for your very kind notes, especially those you've posted to the guestbook. Ross's parents read all of those to him, and they are much appreciated. Take care and be safe.     

December 1, 2003 8:15 PM--Betsy said Ross did great today. He had an excellent physical therapy on the mat this morning. The therapist worked with him rolling from side to side. She would begin the movement by directing his head and arms, but he completed it. They did this for almost an hour. Betsy said he's able to move his head and arms in the direction he needs to go, but doesn't have the strength in his legs yet to move them as well.
     When I called tonight, he was on the tilt table practicing "curls" with his left hand.
     Every night when I call, the news seems better and better, but he still has such a long way to go. Please remember Ross in your prayers. Your support means so much to the family, and we all know it's a huge part of Ross's recovery.

November 30, 2003 8:30 PM--Ross had a good day. When I called, he'd been resting, but Betsy said he is scanning really well now (as opposed to just tracking) which means he is following movements independently within his range.
     Rusty had him curling his left arm up and they also had him on the tilt table for a really good session. He consistently follows instructions, and appears very much in tune with the world around him.
     It's as if the things that were new to Ross just a short time ago are now expected actions and movements. He's come so far, and continues to do well. I want to thank all of you once more for your continuing support of Ross and his loved ones. It's been a long haul, but also a most exciting time to see him doing so well.

November 29, 2003 8:20 PM--Just talked to Betsy. Their guests have gone and the house is quiet again, but they had a wonderful Thanksgiving. Ross had a quiet day today and rested a lot. His family went out and got their Christmas tree and they're getting ready to decorate it tonight. I imagine Ross will be really interested in the whole process.
     Betsy said they decided to change is feeding tube tonight. Usually they have to be replaced every two weeks because stomach acids degrade them, but this one has been in place for a month. When Ross's nurse removed it, it was still in excellent condition, proof that the diet he's on now has reduced the excessive acids he was producing. There was not sign of degradation in the valve at all.
     I'm going to be switching to a new page on December 1, as this one is really getting slow to load because of the size of the file. Hopefully all the links will work and you won't have a problem finding the new updates. I hope everyone has had a safe and fulfilling Thanksgiving. If you're traveling, please drive safely, and thank you, all of you, for your wonderful support of Ross and his loved ones.

November 29, 2003 8:30 AM--I had a brief note from Betsy this morning--in part, she wrote:  

"... I woke up thinking about Ross sitting in the living room with the men last night. Joe, his godfather, was sitting with him and talking about things they had done together in the past. Ross was looking at him the whole time. Later, Joe started looking places up in the atlas, including Fiji, New Zealand and Australia and Ross looked at the maps intently. I firmly believe that Ross understands a lot and will tell us about all these months when he is again able to talk."

I will do a more thorough update when I talk to Betsy tonight.

November 28, 2003 7:30 PM--Doug and I were in Boston all week with our son and daughter-in-law, but I did receive a couple of updates via email from Betsy, which I'm posting below:

Tuesday November 25, 2003:

 Kate,

Daily e-mails are good idea. I am already forgetting yesterday. It was an awesome day. Ross had two physical therapy sessions-in the morning he was rolled from side to side. Ross seemed to enjoy being in the other bedroom and on a double bed--we need to do it several times a week. The PT was very pleased with his response and the pelvic exercises Jeremiah and Lisa have been doing with him showed.

He ate three bites of pudding - ie. he swallowed them. His scanning accuracy with his eyes is getting better and better.

Then he had another physical therapy session in the evening-very good session on the tilt table and deep tissue work on his arms. Jeremy discovered fibrotic tissue in the underarm area that is restricting his ability to move his arm. There are exercises we can do for this and the enzymes will help a lot.

People should know how much their suggestions have helped us. So many of the effective things we are doing to help Ross have come from ideas that Ross's supporters have offered.

Betsy
~~~~~~~~~~~~~~~~~
Thursday November 27, 2003:

Hi Kate,

This was another good day. Ross yelled during the night--not pain, but we don't know what it was about. It was rather prolonged, a few seconds. Apparently, the first time was while he was asleep and the second time, he was awake. It woke the caregiver up.

This morning, we put him on his stomach for almost 25 minutes. There were five or six of us at different times. Rusty, Jeremiah, his wife, Ariel, our friend Patricia and I. He held his head up for 2 minutes, 35 seconds and the next longest time was 45 seconds. After we told him we were finished and to rest, he raised his head and with none of the usual support, held his head up for 35 seconds. We are keeping the timer where he can see the time, and it seems to make a difference to him.

He did well on the tilt table, and then did well in speech, even though he was tired. We put him back in bed at 2 PM to nap, he falls asleep around 3:45 and then we have to get him up by 4:15 for speech. He worked hard for 1 hour in speech, but seemed exhausted afterward. After, being fed, at 6 he perked up, had a bath in the tub, which he really likes, and then was awake until after ten.

Tomorrow we will put him on his stomach first thing in the morning, but will not get him up on the tilt table because of preparation for nearly 20 dinner guests. He is working so hard, that the rest will be good. Also, he will be in his chair a lot. Since he has eaten pudding two days this week, we will probably try pumpkin pie tomorrow.

Happy thanksgiving.

Betsy
~~~~~
I talked to Betsy tonight and asked her if Ross got to have his pumpkin pie, but she said he was so tired from all the activities of Thanksgiving day and the many guests (22 besides Ross) that they decided to wait for a better time for him to try it. Betsy said he is definitely recognizing people and he was very aware of Katie the minute she arrived for the celebration.
     My husband and I celebrated the holiday in Boston with our daughter, son-in-law, grandson, son, new daughter-in-law and her family, as well as some very special friends. The one thing we all were aware of is how very much we have to be thankful for. Sometimes it's easy to forget to count our blessings--after this very special week with family and friends, and especially after reading Betsy's reports on Ross's amazing progress over the past few weeks, I am feeling very blessed indeed. Thank you, all of you, for your faith in Ross's recovery, and thank you, too, for your prayers and your steadfast support. Please, everyone, be safe this holiday season.

November 23, 2003 9:43 PM--addendum--an email from Betsy:
Kate,
As Jeremiah and Eleanor were taking Ross to bathe, they called me to come look. He had raised his left arm and was holding on to the lift above his head where the sling attached. This was brand new and is definitely functional movement.
Betsy

November 23, 2003 8:00 PM--I talked to both Ross's parents tonight. Rusty said he had a great session on the tilt table. We talked a bit about the logistics of dealing with someone with Ross's severe limitations. Just getting him up in the morning, bathed, dressed, fed...it's a monumental task, but something that therapy is working towards improving. At some point, we're all hoping Ross will once again do these things for himself.
     Betsy said he's really "present." Definitely aware of what's going on around him and extremely alert. Today she turned on the video Miracle on 34th Street and Ross was really involved watching it. Betsy said there's more of a sense of him being in tune with what's going on around him every day.
     She also mentioned going through notebooks of information she's collected since he was first injured, and has discovered that many of the tips and suggestions that once didn't really apply to Ross now may work for him, as his condition has improved. Thanks again, to all of you, for your support and good wishes, for your healing thoughts and prayers for Ross and his loved ones. Please call Rusty's update 707.799.8868 for information on Ross, as I won't be posting again until after Thanksgiving. Have a wonderful holiday.

November 22, 2003--Katie passed the Bar! It's so amazing to pass it on the first try, and she did it, in spite of all that's happened this year. She's an absolutely amazing young woman.
     Betsy said Ross had a really good day and is doing well. He rested a lot today and they chose to keep his therapy light, though he did well on the tilt table. This coming week will have a different schedule because of the Thanksgiving holiday, so many of his therapists will not be keeping their regular hours.
    The Dillon house will be full for Thanksgiving, though, with 22 expected for dinner. Betsy said they've done a big Thanksgiving for all the 30 years she and Rusty have been married, and this year will be no different.
    Thank you for your prayers and kind thoughts for Ross and his family. Also, please contact Melanie Moore at [email protected] to be included in a taped video for Ross, especially if you are in the Boston area.

November 21, 2003 10:13 AM--Betsy called just as we were headed out--Ross smiled in his sleep. It's his first smile since he was hurt. She just thought you'd like to know!

November 20, 2003 8: 25 PM--I can't get over the sound of optimism in Betsy's voice when I call her! She said Ross is doing great. They're putting him on his stomach daily and giving him various exercises. Lifting his head is really difficult, but he was able to hold it up for two minutes and thirty-three seconds yesterday. Betsy's said it's like doing the toughest intervals in cycling--he's having to use muscles that have not been worked for a long time. They spend about fifteen to twenty minutes with Ross on his stomach--today he held his head up for two minutes, but Betsy said he was probably tired from yesterday's effort.
     He's also scanning well, following things with his eyes. For instance, Rusty had Ross in the tilt table and was moving about in front of him. Ross followed him with his eyes. Then Rusty walked behind the tilt table and came out on the other side. Ross turned to watch him when he came around. It may not sound like much, but it's a totally new reaction and definitely exciting.
     Betsy said one of Ross's old teachers is coming by to read to him about once a week. They are also playing Mozart for him, but only to his right ear with an earplug. It appears to be doing something positive, as Betsy said Ross's eyes are more focused and he's tracking better since they started the music.
     I apologize for the intermittent updates. We are spending a lot of time remodeling a home we plan to retire to, and I don't have the Internet access there yet, which I need to update Ross's site. However, I've told Betsy that if anything happens that needs to be on the website, all she needs to do is call me and I can be at this house to take care of it. So, if there's no update, it means Ross is continuing to improve but he hasn't started telling his therapists to leave him alone! Thank you, everyone, for your continuing support for Ross and his loved one.

November 17, 2003 9:10 PM--Betsy said Ross had a really good day today and was doing very well. Had physical therapy in the morning with the therapist provided by insurance, and again in the evening with their other therapist. This morning the PT put him on his stomach and had him work with lifting his head. She's also working with him on rolling over on his own. He spent time up in his wheelchair and also had a speech therapy session. He's doing very well there. He spent time just sitting in the chair watching everything going on around him.
     One new thing the therapist did with Ross was to have him clasp his hands together as an aid to sensory perception, sort of a "self to self" sensation. His right wrist is much relaxed which makes this sort of thing possible. You have to remember that, along with the brain injury, Ross is still dealing with recovery from terrible physical injuries, from a  shattered elbow to horrible road rash that injured him bone deep. Those scars are still healing.
     Betsy said they've reached a point where his improvement is a daily thing, and it's occurring on all levels. Not only are his scars beginning to heal but his mental abilities are growing stronger every day.
     Thank you, everyone, for your care, your love and prayers for Ross's recovery. If you would like to be a part of a Christmas video tape that our son Jon and his wife Melanie are doing, please email Melanie at [email protected] Thanks again for your healing thoughts and prayers for Ross and his loved ones.

November 16, 2003 9:10 PM--Ross had a really good weekend, and had an exceptional session on the tilt table today. Betsy said he got his feet into position quickly and was up for an hour. When I called he was sitting in his chair looking very relaxed and comfortable. Katie was here this weekend and Ross always responds well when she's visiting. She'll hear on Friday how she's done on the California Bar.
     Rusty and their friend Paul spent some time working with Ross with a blue ball that's about the size of a kickball. They moved it about, tossing it back and forth, and Ross was watching all the movements and tracking really well. As Betsy expained, because they can move the ball in so many directions at a higher rate of speed, it shows a more sophisticated ability to track.
     Thank you all so much for your continuing support for Ross and his loved ones. Though it may seem terribly slow, he continues to improve. Your prayers are really an important part of his recovery.

November 14, 2003 9:45 PM--Betsy said today went pretty well. They got Ross in the hot tub, but it turned cold and windy while they were out there so it was a less than pleasant experience! Hopefully, next time the weather will cooperate more.
     He had speech therapy and the therapist was really pleased with how well he's doing. They also got him on his stomach and he was able to raise his head, though he wasn't too happy about it.
     Therapy is hard work, but Ross continues to improve. Someday, hopefully, he'll be able to thank all of those who have stuck by him and made him work so damned hard.
     Thank you, all of you, for your continuing prayers and good wishes.

November 13, 2003 8:15 PM--When I called Betsy tonight and asked how the day went, she said it "went great." Ross is doing more every day that can be considered "out of pattern," or new movements. Today he moved his legs, changing the position of his left leg very dramatically. In fact, Betsy said he'd bent his left leg at the knee with his foot pointed out to the side and then rested his right leg over the top of his left. She said she didn't think he'd have been able to untangle himself without help, but the movement was something totally new for him.
     The neat thing is, whenever Ross does something new or unique, he continues to do it again, essentially building on each new action.
     Betsy said she's been told the sense of smell is an important part of recovery, so today she got out her Christmas oils and scents. It may be a bit early, but it's officially the Christmas season at the Dillons'!
     Thank you so much for keeping Ross and his loved ones in your thoughts and prayers. The family really counts on your support.

November 12, 2003 9:00 PM--Ross has had a really good couple of days. Betsy said that on Monday his foot kept moving and it was difficult to get him on the tilt table, but yesterday and today they put him on his stomach for awhile, which forces him to raise his head and mimic a lot of the movements a newborn would do. It's really difficult for him, but after ten minutes Tuesday and eleven minutes today, he was much more relaxed. He also had a really good session with the speech pathologist.
     They're using enzyme therapy on Ross to promote healing, and Betsy said the effects are beginning to show. Scars that have remained ugly and painful are healing, especially one on his right flank that had actually prevented him from lying on that side--it's now beginning to fade and look a 100% better.
     Yesterday when the physical therapist was there, Rusty dropped something on the floor. Ross turned and looked in the direction of the noise, then followed Rusty with his eyes as he picked up the object and walked away. The therapist had Rusty repeat the action, and Ross did the same thing over, which is a sign of real progress.
     Ross's friends Melanie and Jon Moore are putting together a video of greetings from Ross's friends. If anyone in the Boston area would like to be on it, please email Mel at [email protected] . If you're not in the Boston area but would like to be a part of the video and can send a taped message, Mel said they'll be happy to add it. Contact her first, though, so they'll know to expect your greeting.
      Thank you so much for your continuing support, your healing prayers and good wishes.     

November 10, 2003 8:45 PM--Just talked to Betsy. She said Ross still has a lot of tone (rigidity) in his muscles so their attempts to get him up on the tilt table early in the day were not successful. However, they did get him on it later on and he did well. One significant improvement occurred today when the speech therapist was working with Ross and got him to extend his tongue beyond his teeth, something he's not been able to do before. He's showing a lot more movement with his tongue, which is a prelude to being able to eat and talk once again.
     Small steps but consistent and positive. Thank you for your healing thoughts and your prayers for Ross and his loved ones. I will not be available to update tomorrow night, but you can call for Rusty's update at 707.799.8868.  

November 9, 2003 8:40 PM--Talked to both Rusty and Betsy tonight. Ross had a visit today from a chiropractor/neurologist who was very knowledgeable about Ross's type of injury and able to offer some great suggestions on therapies that the family and therapists can use on Ross. Rusty said he was very impressed with the doctor, who was quite familiar with the use of electrical stimulation and also approved of the diet the Dillons are using for Ross. He did a very gentle adjustment on Ross's neck which immediately relaxed him--Ross had been  tense and agitated for much of the day, but relaxed immediately after the very slight manipulation of his neck.
     Since I've been away for a couple days, I asked Betsy how Ross has been doing since Friday. She said that his nurse, Lisa, noted yesterday that Ross was moving both arms and legs at the same time and seemed to be much more alert. Friday was a really busy day, and then they were without hot water all day on Saturday when the hot water heater decided it was time to die, so that didn't make things very easy.
     I talk to Ross's folks almost every night. They are unfailingly optimistic and always positive. I can't help but think that their attitude and persistence in finding the best treatment for their son will ultimately bring about Ross's recovery, but they can't do it alone. As Betsy said, "Every Sunday I realize how much Jeremiah (their aide) does." This is a huge job.
     It's not just the aides and therapists who come and go in Ross's life, it's also his amazing support group that refuses to give up on him, all of you who follow his progress, pray for him and offer your support to the family and to Ross in so many ways. Ross has come a long way since he was injured almost a year and a half ago, and he still has far to go. Thank you, all of  you, for your most welcome stubbornness for an exceptional young man.
     On a personal note, I would like to ask for your healing thoughts and prayers for the wife of Dr. Ed Cooper, who recently broke her hip and is now recovering at home. Dr. Ed has been a constant source of support since Ross was first injured--he's the one who suggested the use of electrical stimulation as a healing tool for brain injury, something that has definitely helped much in Ross's recovery, and he's been there for all of us whenever we had a question or concern that needed an answer, an integral part of "Team Ross" from almost the very beginning.    

November 6, 2003 9:20 PM--Betsy said today went well, especially with the speech therapist, though Ross was pretty toney and the physical therapist elected not to put him on the tilt table. It's not unusual for Ross to have more tone in his muscles after a long day, and yesterday definitely qualified as long.
     Betsy said he's very alert and had been sleeping really well at night. Slept through the night last night, not even waking when Betsy turned him at two a.m. and again at five. The nightly baths really seem to relax him and allow him to sleep better. Betsy said they're hoping to get him in the hot tub this weekend.
     The speech therapist continues to work on yes/no questions with Ross, but Betsy said he still tends to get confused on some of them. However,  he does better all the time.
     Healing is such a long, slow process, but Ross continues to show positive gains. Your support is an important part of his healing--thank you so much for continuing to follow Ross's progress, and for keeping Ross and his loved ones in your thoughts and prayers.

November 5, 2003 10:00 PM--Kind of  a long day for Ross and his folks...he had to go to Marin for an appointment with his doctor, a trip which ended up taking six hours. Betsy said they got the results from his lab tests and his sodium levels were low, so that needs to be adjusted. He is, however, looking great and is very attentive.
     Betsy wanted me to ask if there are any Occupational Therapists who might be able to come and work with Ross at the house.  She said he needs evaluation from someone qualified, and then they need to "go from there."
     The therapists at Kentfield were impressed with Ross's range of motion, tracking, and overall attentiveness. He is definitely showing improvement.

November 3, 2003 8:50 PM--Betsy said Ross is still running a low grade fever and slept quite a bit today, though he did have a very successful session on the tilt table. When I called they were getting him ready for his bath. Betsy said he sleeps much better after a bath at night, so the overhead track that helps them get him in and out of the tub is really making a difference in his comfort.
     He's also doing really well cognitively. He's alert and more aware every day. It's hard to believe it's been a year and five months since Ross was injured. He's  come a long way since those first horrible hours when his life hung in the balance. He's still got far to go, but his improvement remains consistent and positive. Thank you for your continuing support, for your healing prayers, and most of all for not losing hope throughout his long recovery.

November 2, 2003 9:00 PM--Just talked to Betsy and she said Ross was still running a low grade fever and had a bit of a cough, but he was doing well. He slept through the night and when she checked on him this morning he looked very peaceful. There's less tone in his muscles, and Betsy was telling me that when she has to move him, she can say, "Ross, on the count of three, you need to lift your shoulders..." or whatever command, and he can do it.
     His right hand is looking better--he's been holding it clenched very tightly--but now they've got him gripping a rubber ball and it seems to help. She said that tonight Ross was watching her very intently, as if he were trying to figure something out. All in all, he's looking very good.
     On another note and for the information of all of you who are cyclists, there is something very troubling going on that you might not be aware of. A number of disc jockeys on various radio stations have been encouraging motorists to hit bicyclists with objects thrown from their cars, or to hit them with open car doors. There is an article posted (article is no longer available) if you'd like to take a look. There is a link on the page to the FCC in case you want to comment on this sort of irresponsible on-air discussion.
     Thank you for your continuing support and healing thoughts and prayers for Ross and his family. And to all of you here in northern California, I hope you're enjoying the rain, the first we've had in a long, long time.

November 1, 2003 8:30 PM--Betsy said Rusty finished installing all the ceiling track so now they can get Ross into the hot tub as well as the bath. They're planning to try the hot tub tomorrow. Betsy said Ross slept really well last night following the bath, though she thought he was sad this evening. Katie had to leave after a two day visit, and he is always unhappy when she goes. She'll be starting her new job with a law firm in San Francisco on Monday.
     Betsy said Ross was running  a low grade fever today, so they're keeping an eye on him, but overall he had a really good day. Please keep Ross and his family in your thoughts and prayers, and remember Katie as she begins her new job. Thank you so much for your continued support.  

October 31, 2003 8:00 PM--Figured I'd go ahead and do an update tonight, as I ended up staying home after all because of a bad head cold. I just talked to Betsy and Rusty was installing the track lift to get Ross into the hot tub. He already got a ceiling track installed in the bathroom so they can lift Ross out of his wheelchair and into the tub for a bath. Betsy said it's really cool and works by remote control. He's too heavy for them to lift in and out of things without an aide, so this is a perfect solution.
     Betsy said Ross had a really good day and he is looking absolutely terrific. He's very alert and they're really pleased with his progress.
     Thank you so much for your healing prayers for Ross and his family. You are all an amazing source of support.

October 30, 2003 7:40 PM--Ross had an outing today with a trip to the hospital for some routine lab work. Betsy said they also weighed him and he's gained about eight pounds on the "real" food that Betsy's been preparing. His weight is up to 168.4 lbs., which is right where he should be. He only weighed 158 pounds when they first brought him home.
     He slept well last night and was having a therapy session when I called tonight. Betsy said she thinks he still has pain but is doing well. They're not sure where he hurts, but she's assuming it's either a massive headache or muscle pains from the therapy. He's also been coughing a lot, but it's a productive cough, which is a good thing as he's always had trouble with allergies and congestion.
    The biggest thing is that he's definitely showing more facial expressions and moving his mouth more. Betsy said he's looking "more like Ross" every day.
     My next update will be on Sunday, as I"ve got to be away for a couple days. Call 707.799.8868 for Rusty's nightly update.
     Thank you, everyone, for your prayers, your healing thoughts, your kind and thoughtful letters. It never ceases to amaze me that you've all stayed a part of this wonderful team for so long. "Thanks" seems a very weak word for something like this.     

October 29, 2003 8:40 PM--Ross had a fairly good day today, though he was really tired. Betsy said he had a "grand mal" seizure last night that lasted about two minutes. She thinks it was caused by the strobe effect of the television: Ross was watching a rugby tournament with his dad and she said he was totally mesmerized by the TV. The color and light can create a sort of strobe like effect that can precipitate seizures, and that's what they think caused Ross's. He still managed to work hard with the  therapist today and he continues to do well. Two steps forward, a small one back...it's a long and exhausting process, but still progress. Thank you all so much for your healing thoughts, for keeping Ross in your prayers, and also for your encouraging notes, both private and to the guestbook. They mean so much to all of us.

October 28, 2003 9:15 PM--Betsy said Ross had an excellent session with his speech therapist today. Lots of consistency in his responses, more mouth movement and an overall good day. He'd been up since four p.m. in his chair when I called around eight, the second "session" he'd had in his chair today.
     Betsy said the most exciting thing was when she put a pen in his hand. She tried his right hand first, but because his elbow was broken when he was hit, there's a lot of calcification in the joint and it affects his mobility, so he was only able to make small marks on the paper. She put the pen in his left hand, and he made larger marks, but he also re-adjusted the pen in his grasp when it tended to slip. Betsy explained the movements as small motor and large motor control, but said it was very exciting to see him making voluntary adjustments and movement with his hand.
     I haven't seen Ross for a few months now, but hope to visit soon. From the pictures, it's just amazing to see the changes in him. Your support and also your wonderful notes to his guestbook are so much appreciated. Thank you, everyone, for continuing to be there for Ross through this long and difficult recovery.

October 27, 2003--Betsy said Ross is doing well and had a particularly good session on the tilt table. He's got less tone in his muscles and she's really pleased with the enzyme therapy they're using. It is designed to reduce scar tissue and aid healing, and appears to be working. Today Betsy said she put a pen in his hand and he was able to make some marks, though it's still fairly awkward. She said that, at one point when he was holding the pen, there was a real flash of memory, but it didn't last. There's still a lot of healing left to take place.
     Thank you, everyone, for your continuing support and healing thoughts and prayers. It's been a long haul, and there's a lot more ahead, but Ross is healing and showing slow but steady improvement.
     You are all very important to his recovery.

October 26, 2003 9:00 PM--I talked to Betsy tonight and she said the last few days have gone well. They've had a lot of company: Ariel and her friend Ryan were there, Katie as well as her parents, friends of the Dillon's who came to visit...Betsy said their friends from the city hadn't seen Ross for about a month and were amazed at his progress. He's alert, looking around, watching his visitors...Betsy said he did really well on the tilt table tonight and overall continues to show improvement.
     To all of you, a definite thank you for your healing thoughts, your prayers for Ross's recovery, and you constant attention to his long period of healing. You mean more than you can possibly imagine. Thank you.

October 23, 2003 8:30 PM--Today was a down day for Ross. His mom said he appeared to be in a lot of pain most of the day, but she isn't sure what's causing it. Could merely be his increasing awareness of his condition--Betsy said she really wasn't sure, only that he seemed to be very uncomfortable.
     She wanted me to ask you to keep Ross in your thoughts and prayers as this is such a difficult time for him. It's really hard for him emotionally as he resurfaces and rediscovers himself...only he's not the man he remembers. I keep thinking how frightening this must be for him, to emerge into a partially aware state where all is changed, where time has passed and his body is no longer familiar.
     Betsy didn't ask, but I will, that you also remember Ross's family and fiancee as they deal with his terrible injuries on a daily basis. It's been well over a year since he was injured, and though he's come a long way, there is still so much work ahead of him. Thank you, all of you, for being a part of his journey.

October 22, 2003 9:00 PM--Called to talk to Betsy and she said Ross is doing well. He had a massage, followed by a good nap, and then a really good session with his speech therapist. He's showing a consistently higher percentage of correct responses each day. Betsy said that tonight she was sitting in front of the computer and Ross was watching her play a card game when he began workng his mouth as if he were in therapy. All these movements are signs of increasing awareness. He's looking really good, especially since being off the formula and on a "real food" diet. As Betsy said, he looks lean and muscular.
     He's had a couple of really emotional times--hard for his folks, but still a sign of increasing awareness. I asked how he'd been when our son Jon and his wife Melanie visited last week, and Betsy said Ross was quiet while they were there, but started crying later that night after they left. As difficult as it is for his family to witness this, it's all a sign of Ross's increasing recovery.
     Thank you so much for your thoughts and prayers for Ross. It's been such a long time since he was hurt, but he has come a long ways. He couldn't do this without your support.

October 20, 2003 9:15 PM--Tonight when I asked Betsy how the day went, her only reply was WONDERFUL, and yes, that was spoken all in caps and bold print! She said Ross had a terrific day. Had a very successful physical therapy session as well as his speech therapy, where he managed an 80% success rate on following commands. He's opening his mouth well, moving his tongue, turning his head...all things he's not been doing on command since the accident. Betsy said he also did really well on the tilt table, so it was definitely his day.
     I'll post again on Wednesday. In the meantime, thank you for your thoughts and prayers and for being there for Ross throughout his long recovery.

October 19, 2003 8:50 PM--I'm back after five days at a writer's convention and booksigning in Kansas City, so will post a brief update before I crash. I talked to Betsy tonight and she said Ross was doing well and the last few days have been good. He's been working hard on the Yes/No responses and is currently getting 50-60% of them correct. Unfortunately, the therapist arrives late in the afternoon when Ross is really tired, so Betsy says she thinks the results could be better if he could be tested when he's rested, but such is life. The Speech Pathologist is interested in accuracy, getting Ross to hold the location of either his eyes or his head as he responds to the placards. The object is to get him to answer and then hold it for at least a couple seconds. He's doing really well.
     A big project at the Dillon household will be the installation of a ceiling track that will allow them to use a lift to move Ross outside to the hot tub. That should feel really good to him, especially when his muscles are tony. Betsy said, however, that he's not as tony today and is doing well, more alert and responsive every day. He appears to be paying attention, and though he is obviously sad on some days, Betsy said she still feels very hopeful about Ross's progress.
     Thank you, everyone, for your healing thoughts and prayers throughout Ross's long recovery.

October 14, 2003 8:10 PM--This will be my last update until Sunday. Betsy said Ross had a really good day. She tried something new: putting a pen in his hand and directing him to make some circular motions and figure 8s...then she let Ross do it on his own, and he drew some straight lines across the page and some squiggly marks. As Betsy said, she wasn't sure what it meant, but it was exciting to see him doing something on his own.
      They're still working to get his mouth to open wide enough so that he can take food by mouth, but he's not consistent enough for them to try it yet. However, he's doing really well and is definitely more aware and alert than he's been in the past.
      It's been such a long haul, but thank you, everyone, for hanging in there. Your support means so much to Ross and his family.
      Please check Rusty's phone message at 707.799.8868 for current updates after tonight. I'll be in Kansas City, Missouri, until late Sunday, but will continue the updates once I return.

October 13, 2003 9:30 PM--First of all, before I forget, I may not be updating tomorrow through next Saturday night, as I'm going to a writers' conference in Kansas City for five days.Rusty continues his nightly updates on the telephone, so you can call 707.799.8868 to stay in touch.
     Betsy said Ross had a good day today, especially during his time on the tilt table. Friends Jon and Melanie Moore stopped by to visit while out for a brief trip from Boston, and Betsy said she felt that Ross was very emotional when they were there. It's really difficult for him because he can't communicate, but he's very aware of who his visitors are, and it's really important that his friends do come by to see him.
     Betsy said that, overall, it was a good day. He's doing well on "real" food and she spends a lot of each day preparing meals for him. A friend who is into holostic eating has given Betsy a lot of good ideas for food combinations, and it appears to be working. Ross has put on some weight, but it's not fat so much as muscle. His therapists work him very hard and he's got leg muscles he didnt have just a few months ago.He's breathing better and swallowing better, and overall, looking really good.
      Thank you for your thoughts and prayers, for keeping Ross and his loved ones in your lives. He is constantly showing improvement, though he still has a long ways to go.      

October 12, 2003 9:40 PM--Betsy said Ross had a good weekend. No really big changes, but he is definitely more alert, tracking better and more aware of his surroundings. His nurse Lisa hadn't been there for the past two weeks, so when she saw Ross she really noticed a difference. He was, as Lisa noted, "looking older and sadder." Increasing awareness will bring the sadness, as Ross realizes how badly he is hurt and how far he still has to go.
     Betsy said the switch to real food had been a good one. She's also cut out his Clariton for allergies and is using the vaporizer instead. It appears to be working. Ross is constantly looking around and tracking, observing the activity in his room. Betsy said he really focuses on her when she comes into the room.
     They took a trip out and went to Murphy's Pub in Glen Ellen. Ross was a bit agitated at first, but settled down. Betsy said it's good to get him out around people.
     A big thing is that Ross has been doing "out of pattern" movements. There are certain things he does that are a result of his injury: the way he might hold his hands or his feet. However, he is beginning to show more variation, a number of moves that are out of the typical pattern of a brain injured patient. This is a good thing, and possibly a sign of healing and retraining.The way he holds his hands is changing--all small but important things.
     The therapists are still working on improving communication. There is a long way to go, but he has already traveled far.
     Thank you for your healing thoughts and prayers. Ross needs you now more than ever.

October 9, 2003 9:25 PM--Betsy said Ross is doing pretty well tonight. They've switched him to Advil for pain, which appears to work better than the Tylenol, so long as they give it to him with food. He had a busy day with the speech therapist, working on "yes" and "no" answers to questions.
      David, the speech therapist, really makes Ross work hard, but Betsy said she thinks Ross is very aware and respects David's work.
      His growth is subtle but very consistent. Thank you so much for your continued support and healing prayers for Ross and his loved ones.

October 8, 2003 8:45 PM--I talked to Betsy just awhile ago and she said Ross was doing really well. His speech therapist has begun keeping a record of Ross's progress, and already he is showing great strides. They're doing a lot of new things which Betsy described as "more cognitive" work, requiring Ross to make choices, for instance, in where he looks or what he does.
     His sinus problems are improving, possibly due to a change in his diet, and he's continuing to do well in all aspects of his recovery. Betsy said it's exciting to watch him and see the changes and improvements as each day goes by. Obviously, Ross still has a long way to go, but he has come even farther.
     Thank you so much for your support, for your prayers and healing thoughts. It's been a long haul and will take longer still, but your constant support of Ross and his family is so very important to all of them. Thank you.

October 5, 2003 8:50 PM--I have to apologize for the missing updates, but I am currently having to be away from a computer for some nights of each week and am unable to update as regularly as I have been. If you want a nightly report and I have not posted, please call 707.799.8868 for Rusty's message.
     Betsy said Ross is doing better, but she's certain he had a cold along with the bladder infection. There have been a lot of bugs going around, and he had too many other things going on for it just to have been the one thing. She's using the vaporizer again with him to help him breathe.
     She said he's defintely uncomfortable and more toney, but they think it's because Ross is more aware of his situation. In the meantime, Betsy is fixing him "real food" meals which then have to be blended, but at least he's on a regular diet. Tonight was chicken, celery, cabbage, fresh saurkraut, ginger tea and chives, but since it's all blended together and fed to him through a tube into his stomach, there's not much to taste!
     They're trying to get him back to working on the tilt table. Betsy said that, since they overdid it a couple weeks ago, they've backed off on it. Tonight, however, they had Ross back up on it. He appears to be more uncomfortable much of the time, but Betsy said she's convinced it's because he's more alert and aware of his circumstances.
     Thank you, everyone, for your kind notes, your healing thoughts and prayers. You are very much a part of Ross's recovery.

October 2, 2003 8:50 PM--Ross is still running a slight fever, but definitely feeling much better. Betsy said he had a good day and worked well with the speech therapist, moving his head from side to side to look at objects he was directed to. When I called, he was sitting in his chair watching TV.
     Betsy said they're giving him all regular food now, blended of course, to go through the tube into his stomach, but he's not getting the premixed formula. They were advised to feed Ross the same sort of things he'd have at regular meals, so Betsy is working at preparing nutritious meals out of things he would normally eat. So far, so good. Of course, he still can't take food by mouth, but that time will come.
     He's definitely getting better. Betsy said it's really encouraging to see the gradual improvements each day that tell them Ross is healing.
     Thank you, everyone, for your thoughts and healing prayers and especailly for your thoughtful notes to both Ross's guestbook and to me. I pass everything on to his parents, and they read all the messages to Ross. His support group is a constant surprise to me, that so many of you have stayed with him throughout this long recovery.

October 1, 2003 8:45 PM--I was away yesterday so didn't update, but when I called Betsy tonight she said Ross was really sick yesterday. Turned out to be another bladder infection--his fever was up to 103 degrees until they got him on antibiotics.
     He's much better today, and noticeably better tonight as compared to this morning, but Betsy said they cancelled all his therapy appointments until tomorrow. She read the guestbook entries to him today--the notes are so special and mean a lot to everyone. One especially wonderful message was from Jenna Prewitt, a young woman who was seriously injured in a car accident shortly after Ross was hurt. Many of Jenna's injuries were similar to Ross's. I learned about Jenna through a mutual friend, and it was so exciting to read her message today and realize how far she has come. It gives us all hope for Ross's recovery, knowing how seriously Jenna was injured.
     Tomorrow Ross is back with his therapists. Please remember him in your thoughts and prayers--your support is so important to his recovery.

September 29, 2003 8:15 PM--Betsy was out so I got tonight's update from Katie. She said Ross had a really good day. Joanne, the physical therapist from Sonoma Valley was there. She worked at getting Ross on his stomach and resting on his elbows. Her goal was for him to raise his head, the way a baby does when placed on its stomach. Ross responded exactly the way she hoped, though Katie said he wasn't too happy about it! The PT also worked on his hips and lower back to help relieve the tension in his muscles. Jeremiah, the aide, was there this afternoon, but they're on their own tonight.
     I asked Katie if Ross ever made any sounds in an attempt to communicate. She said he moans when he's in pain or displeased, and definitely uses the sound to get their attention, but so far he's not saying any words.
     Thank you for your continuing support of Ross and his loved ones and caretakers. Your kind thoughts, wonderful notes and healing prayers are a huge part of his recovery.

September 28, 2003 8:45 PM--Betsy said today Ross was very quiet but alert, though he didn't like the tilt table yesterday at all. When he was up on it, Betsy was away for awhile, Rusty was busy with some other things and Lisa, his nurse, was trying to get some stuff done so he was by himself part of the time. Betsy said he appeared to be very nervous because he was alone, so they'll try not to do that in the future.
     Tonight he was up in his chair and doing well. I asked Betsy if they had tried giving Ross food by mouth yet, and she said the speech pathologist didn't think he was ready. The goal is pumpkin pie by Thanksgiving.
     When I asked Betsy for her gut feeling about Ross, she said he is doing well, he's not as tense, is more alert and definitely capable of more expression. He's still having trouble with allergies, but with the air quality as poor as it's been lately, he's not alone.
     Katie was there tonight and Betsy said Ross was doing well. There was a wonderful note in his guestbook today from Roger, a TBI survivor who has gone way beyond surviving. He wrote: Ross :missed you at the Liberty ride but did meet your dad. I sent you a message a year or so ago and told you that I was a TBI victim too and even though the doc's said I wouldn't walk or talk, I now do both and cycle about 2000 miles a year. Keep fighting because I'm getting better 13 years post accident. Roger
     Betsy said she read his note to Ross. Messages like Roger's are so important because they remind us just how much hope there is. Thank you, everyone, for your thoughts and prayers, for your healing energy that continues to help Ross through this long recovery.

September 25, 2003 8:50 PM--Today went well, though Ross protested being on the tilt table, so they didn't spend much time there. Betsy thinks they may have pushed him too hard the other day, which is why he doesn't want any part of it now. She said they'll back off and start back slowly. Hopefully a fresh start will work for him.
    Ross's lower back seems stiff and it affects the way he is able to sit in his wheelchair. Betsy said they're looking into a drug called Serrapeptase for Ross.It's a natural anti-inflammatory.
     He did really well with his speech pathologist. Did range of motion with a tongue depressor against his tongue, and Ross had to push against it. He's doing so much better now at following instructions.
     He was awake a lot last night, most likely due to his allergies, but Betsy said it didn't seem to affect him during the day.
     I will be updating again on Sunday, as I have to be away until then. In the meantime, thank you so much for your healing thoughts and prayers for Ross's recovery. You are an amazing support group for a very special young man. You can keep up with Ross by going to Rusty's phone updates at 707.799.8868.

September 24, 2003 7:50 PM--Betsy said Ross is very tense tonight and has been for most of the day. She's convinced it's due to his increasing awareness of his condition. He's very alert and worked well with the speech pathologist, but there's been a a pensive quality to him that isn't usually as obvious. Betsy said he's not as sad as she's seen him, but there is obviously something going on that makes him more solemn than usual.
     Ross's doctor has him on a new drug that will help manage the seretonin levels in his brain by preventing receptor sites from manipulating the chemical in his body. One of the side effects is sleepiness, so Betsy said they're watching him carefully. She feels that he's aware enough to really be bothered by the fact he can't make the independent movements he wants, but he's gaining more every day.
     Thank you for your healing thoughts, your prayers and continuing support of Ross and his loved ones during this long recovery. Thank you, too, for your encouraging notes and messages, both privately and in the guestbook. Your comments mean a lot to all of us.

September 22, 2003 8:00 PM--I do love good news! Tonight Betsy told me that the speech pathologist brought "yes" and "no" cards today and asked Ross a whole series of questions. They were fairly simple and straightforward: Is your name Ross? Are you male? Is the fire cold? Ross was able to answer ALL of them correctly. No one expected 100% correct answers, so it's definitely an indication of how well he is doing. As Betsy said, she believes he's known the answers all along, but his body is finally healing enough to allow him to give the correct responses.
     I will be gone tomorrow night, so please check Rusty's message at 707.799.8868 for the update. Hopefully I'll have even better news by Thursday.
     Thank you, everyone, for your prayers and healing thoughts. You are all an important part of Ross's continuing recovery.

September 21, 2003 9:40 PM--Betsy said Ross had a good day. No therapists or aides there today, just Ross and his mom and dad. Betsy said they gave him a bath in the tub using their lift to get him in and out and he took a long nap afterward. As hot as it was today, I imagine the bath felt wonderful!
     He also spent about two hours up on the tilt table. The big difference, now, is that when Betsy is trying to position his foot and asks him to move it, he does. Rusty said the same thing--it used to be really hard to get his legs lined up perfectly, but now a mere touch to Ross's thigh and the request that he move his leg is all it takes for him to move into position. So much progress but in such subtle increments...sometimes it's so easy to forget to celebrate the small victories.
     Ross has reached a point where he can move his head and shoulders on command. He's alert and seems really intersted in people and things going on around him. Definitely a lot of improvement from just a few months ago.
     Thank you so much for continuing to follow Ross's recovery and for keeping him in your thoughts and prayers.

September 20, 2003 9:30 PM--Ross had a good day, though Betsy said he was very emotional and seemed really sad for much of it. She said they've been told to expect that, as Ross becomes more aware of his circumstances and surroundings, but I doubt it makes it any easier for his parents to handle.
     Katie was here for a couple of nights' visit, which is always a really good thing. Ross definitely responds to her presence.
     Betsy tried some simple math with him tonight, holding up two plums in each hand and asking him how many there were--three, four or five. She asked him to nod his head for answers, and he was correct twice when she tried it. Solving even minor math problems is a sign of cognitive activity and it's something Ross couldn't do just a few days ago.
     Improvement is happening all the time. It's not quick, but so far it has been consistent. Thank you, everyone, for your prayers and good thoughts for Ross. You are a very important part of his recovery.

September 18, 2003 9:00 PM--I apologize for not updating but have just gotten a new computer which, hopefully, will work a bit longer than the last one! Betsy said Ross is doing really well. He's sleeping through the night and when I called was up on the tilt table, his feet flat on the ground and totally focused on the therapist.
     Katie was back from a trip and he was definitely aware of her presence. Betsy said when Ross is awake he is really aware and alert to his surroundings. He's also trying new things: different movements with his mouth, arms and legs.
     One of the best things for Betsy is the fact donations to the Hope Fund have allowed them to hire an aide for a few nights a week so that she can sleep. Ross's care, at this point, is very demanding, and sleep has been a rare commodity for the past few months.
     Ross's labwork came back and everything looks fine. Betsy said she thinks  his problem was due to the removal of the beta blocker from his medications.
     Thanks to all of you who continue to donate to Ross's care. Thank you, too, for those of you who keep him in your thoughts and prayers as you go about your days. Your care and concern is an important part of his recovery.

September 14, 2003 8:30 PM--Ross is much better today, though Betsy said they won't know what was going on until they get the blood test results. One therapist suggested the high urine output might be a result of diabetes insipidus, which Ross had about at year ago at Marin General. Today, however, his vitals are good and all functions normal. He's very alert and was up on the tilt table for over an hour. He also held his head up on his own for about twenty seconds without any support. Another "new" thing is that on two occasions when Rusty pointed at something, Ross looked in the direction he pointed.
     My computer is going in for some work either Monday or Tuesday, so I may not be updating for a couple of nights. This thing has been giving me fits for months, now, and appears to be getting worse. I'm afraid of losing information, so need to get it fixed.
     Thank you, everyone, for your prayers and healing thoughts for Ross and his loved ones.

September 13, 2003 7:50 PM--I just called Betsy, expecting more good news, but tonight they're very worried about Ross. If anyone reading this list is familiar with the various chemical balances in the body and has some suggestions, we'd sure appreciate your expertise. Though Ross is alert and calm and doing well, he is also urinating at an alarming rate, something which is often a sign of low sodium levels. His pulse rate is elevated, and Betsy and Rusty are somewhat alarmed. The doctor has said they can do some tests on Monday, but Ross's health can be so fragile, I know they're concerned about the situation now.
     There have been no significant changes in his diet or medications, but his output has quadrupled from the normal rate. Please email Betsy at[email protected]  if you have an suggestions.
     In the meantime, please remember Ross and his loved ones in your thoughts and prayers.

Special notice: September 12, 2003--email message from Betsy:
      Exciting update. Ross was active through the night but slept through it. The activity was a lot of yawning and loads of stretching ( bringing both knees up and then straightening them out.) I stopped trying to position him just so, because he would stretch and change position constantly. This is big step!!
     Betsy
(September 13--I'm just home and saw Betsy's email so wanted to post it--I'll add my usual update later this evening. Kate)

September 11, 2003 8:35 PM--When I called Betsy tonight they had just finished Ross's session on the tilt table. She said he did really well. Jeremy did full range of motion exercises with his left arm and hand, and all it great. The splint for Ross's more constricted right hand arrived yesterday.
     He slept better last night and is doing really well tonight, though Betsy said it was obvious he was uncomfortable much of the day. Jeremy said that's all part of "Stage4" and the "fight or flight" response Ross has with increasing awareness.
     I will not be able to update tomorrow night. If you wish, please call 707.799.8868 for Rusty's message.
     Thank you for your continuing support and prayers for Ross's recovery.     

September 10, 2003 9:00 PM--Betsy said today went pretty well. She's cut out the Benedryl and Ross slept better last night. He was awake at three, but she thinks he want back to sleep shortly thereafter.
     He was up on the tilt table for a full hour tonight and did really well. He was moving his right leg, and appeared to be really alert.
     Bersy is giving him more "real" food, though it's still through the tube into his stomach. Today he had chicken, brown rice, chicken broth, and later on a combination of fresh fruits, goat's milk yogurt, romaine lettuce, ginger root and some parsley. (I told Betsy it sounded gross, but she said she tasted it and it was pretty good...sort of a high-tech smoothie!)
     Ross continues to improve. His cough is better and when he is awake he is alert and attentive. Betsy said she is doing some research into the use of melatonin to see if that will help him sleep better at night.
     Thank you, everyone, for your healing thoughts and prayers and for your kind and supportive messages.

September 9, 2003 8:20 PM--Ross was awake from one a.m. until nine this morning, then slept most of the day. Betsy said they have been keeping a record of his sleep patterns and realized the sleepless nights began with the addition of Benedryl for his allergies, so she's cutting that out.
     However, Ross is doing really well when he's awake. He's alert and his eyes are dilating the same size. He appears to be tracking quite often with both eyes now.
     Betsy said they're looking for more volitional movement, but that Ross is definitely more active. The speech therapist said they need to establish one consistent movement in order to develop communication--a raised finger, blinks of his eyes, etc. Ross is moving his legs more as well as his arms and shoulders, all movements that they hope will translate, eventually, into being able to turn himself over in bed.
     He has always turned his head to the right, but Betsy was telling me tonight that the physical therapist was wondering if that might be more a pain response--Ross has had so many surgeries and so much done around his neck that the muscles might be tight due to pain rather than neurological impairment. Betsy said they've been giving him neck massages and he seems to respond really well to them.
     Every time I write an update, I find myself looking for something that you, as Ross's friends, will find interesting and positive. Lately it's been really fun to write the updates because I hear the excitement in Betsy's voice each night when I talk to her. The improvements are all so subtle, but still they're steps in the right direction.
     That, in and of itself, is a miracle.
     Thank you so much for being there for Ross and his loved ones. Your support is a huge part of his recovery.

September 8, 2003 8:45 PM--Tonight Betsy said Ross is doing really well. He's still waking up in the night and staying awake, but Betsy said she realized a lot of his sleepiness during therapy was because she was feeding him just before the therapist arrived! Nothing quite like a nap on a full stomach...
     He's eating a lot of "real" food now--run through a blender so he can get it through the feeding tube into his stomach, but at least he's getting the combinations of foods he would normally be eating, along with the formula mixture.
     He's doing really well following commands, opening and closing his mouth or his eyes as requested. Betsy said she's really pleased with his progress. He continues to show improvement, slow though it may be, but each step forward is one he was never expected to make. It's really quite amazing to realize how far he has come.
     Thank you so much for your prayers and healing thoughts. Thank you, too, for your kind notes of support. They mean so much to Ross's family, and I know they read all of the messages to him.

September 7, 2003 8:10 PM--Today is Ross's birthday, his second since his accident. At the age of 27, he has made amazing progress, but still remains in a world just beyond the rest of us. He is alert, responsive, aware to a certain point of what is going on around him, but still isn't quite a part of the immediate reality we all take for granted.
     Betsy said he's been waking up at night around one a.m. and staying awake until about six, which means he's sleepy during the day when the therapists are there to work with him. Still, Betsy said that when Ross's sister Ariel came home this weekend, he watched her wherever she went, tracking her every move around his room.
     Just one year ago, Ross was dealing with what the doctors thought was hydrocephalus, but which turned out to be pneumocephalus, or air in the ventricles of his brain. Now, he is healing and showing regular progress, something a lot of doctors said wouldn't happen.
     Thank you so much for your healing prayers, your kind thoughts, and for sticking with Ross throughout this long and difficult recovery. Remember always that he is improving, he is getting better, and with prayer, a lot of hard work and a certain amount of luck, he's going to come through this.     

September 5, 2003 8:50 PM--Ross had a really good day. Betsy said he was awake for about three hours during the night, but they all slept in to compensate and it appears to have worked. They got Ross up on the tilt table this morning and he was very alert and moving his head around, watching what was going on.
     Betsy spent part of the day dealing with the splint company. Ross requires splints on his hands to control the contracture, but the company tacks on an extra $30 charge when Betsy orders them because she is not a health care worker. The splints cost $80 to begin with, so the fee is a pretty big deal.
     She had the therapist check Ross today and they decided that his left hand is doing so well that he doesn't need a splint on it anymore. However, Betsy ordered the one for his right hand.
     The physical therapist commented tonght that Ross is making "out of pattern movements" during therapy, which is a good sign. All in all, he is doing really well, something Betsy said she can't help but notice.
     Please remember Ross and his loved ones in your thoughts and prayers. I will not be writing an update tomorrow, so please call 707.799.8868 for Saturday's information. There will be an update on Sunday, September 7, which is Ross' s 27th birthday.

September 4, 2003 9:25 PM--Betsy said Ross seemed really tired today. He's had speech therapy and time on the tilt table--lots of work for him. He seems more contracted than usual and more tired, but Betsy said she thinks he's really sad, as if he's more aware of his circumstances. I can't imagine how frustrating it must be for Ross if he's actually becoming aware of his injuries.
     His mom said she likes to remind herself there are going to be ups and downs, but she is convinced Ross definitely understands his situation. Sometimes he looks scared, and that's really hard to take.
     Still, his recovery continues, slowly but very steady. Thank you so much for supporting Ross throughout this difficult time.

September 3, 2003 8:45 PM--Today marks a year and three months since Ross was injured. When I talked to Betsy tonight, she said the last few days have been good but exhausting. Ross is doing well and showing improvement on a daily basis. Today he was taken to Kentfield for an evaluation. Betsy said he was very tired by the time everyone had seen him. It would be so much better if he could be tested and examined at home under better circumstances, but that just isn't going to happen. By the time he's ready for the long trip into Kentfield, the morning is half gone and Ross is already tired.
     Even so, it was a good visit and everyone who saw Ross was impressed with his improvement and the relaxed muscles. He's doing well in physical thereapy and especially well in speech therapy, where his swallowing is improving to the point where they are hoping to try giving him bits of food by mouth within a month or so.
     Betsy said Ross will be able to continue to see Dr. Doherty at Kentfield in an outpatient capacity. Betsy was really pleased to learn that, as she said she likes the doctor's "style." Dr. Doherty discusses things with Ross's folks, gives them the pros and cons and helps them make their own decisions regarding his therapy and care, something they haven't always experienced.
     Ross continues to show improvement. He is doing very well with his "trunk stability" exercises, which include sitting on the edge of the bed and holding his head up. He's following instructions much better than before, is alert and tracking well. All in all, he is steadily gaining on his injuries.
     I apologize for the length of time between updates, but I will continue to post to this site as often as I possibly can. Ross is doing really well and I fully believe that much of his recovery is due to the powerful cadre of friends he has praying for him, sending him their strength in thoughts and action, and believing he will one day walk away from his injuries.
     Thank you so much for being there for him and for his loved ones.

August 28, 2003 9:20 PM--Ross slept part of the day but the dental hygenist still managed to do her exam and said his teeth looked pretty good. It's been difficult for Betsy to brush them because he wasn't able to open his mouth very wide, but that has definitely improved. Ross's speech therapist was absolutely delighted with his progress. He's opening his mouth better than ever before, all signs of recovery.
     He did really well with his physical therapy. Betsy said she noticed a big difference when he was lying on his stomach and she was working with his left leg. He was more relaxed than he's been, and she was able to move it normally.
     They also had him sitting on the edge of the bed, working on "trunk control, " and he did really well.
      Betsy said she's beginning to give him "real" food to see how well he'll tolerate it instead of formula. So far, all is well. The goal is to have him eat real food by mouth by Thanksgiving. (His favorite is pumpkin pie!)
     Ross' s recovery has not been easy. It takes a tremendous amount of devotion from his family and the constant expertise of professionals. It also takes a lot of prayer and good healing thoughts from a lot of people. Thank you so much for your continuing support. I will not be updating again until Wednesday, Sept. 3. Please call 707.799.8868 for updates until then.

August 27, 2003--After a couple of days of being wide awake, Ross had a sleepy day today. However, he did wake up for his speech therapist and did really well. Spent some quality time on the tilt table--Betsy said he's still plagued by a lot of drainage which makes him uncomfortable, but she also noted that his eyes were equally dilated and, while not focusing perfectly, looked a lot better. That's definitely a day-to-day situation.
     She said they were given a much better suction machine as well as a better electric Hoyer lift for moving Ross. All of these things make it easier to care for him.
     Thank you so much for your thoughts and prayers. Ross continues to improve, though it's obvsiously much slower than we all hoped. The fact you've stuck by him all this time means a lot to all of us.

August 25, 2003--Ross slept through the night, even when Jeremiah, his aide, turned him, and didn't wake up until seven. Today was a full day with a trip to see the physiatrist and then his case manager, but he was awake for all of it, including the visits from both his speech therapist and physical therapist after he returned home.
     He's still having a lot of trouble with sinus drainage, though Betsy said today she almost felt as if he was trying to work with the congestion to make sounds. When she asked him to open his mouth so she could suction him out, he immediately turned in her direction and did as she requested. The speech therapist noted that Ross is swallowing better than ever and is also able to open his mouth really wide, on command.
    Betsy noted that when Ross was still at Herrick and the acupuncturist was coming in on a regular basis, he told her that one side of Ross's face appeared to be paralyzed. Now, Betsy said, there is no sign of facial paralysis at all. She thinks the median nerve stimulation is making a big difference.
     I will not be able to update tomorrow night, but I should be able to on Wednesday. In the meantime, you can get an update by calling 707.799.8868.
     Thank you for your healing thoughts and steady prayers for Ross. You truly are part of his healing, and very much appreciated.

August 24, 2003 8:50 PM--Betsy said tonight that Ross is doing well though he's still having problems with sinusitis. I asked if that could be a result of the surgery he had to repair damage to his sinuses and the frontal lobe of his brain, and she said that was exactly what she and Katie were talking about. Ross has had so many invasive procedures done, it could probably be just about any of them...he has had allergies for years, but nothing like what he's been dealing with recently.
     In spite of the problems, Betsy said things are really going well. Stuff she said they used to pray for is now routine: Ross holding his head up, his relaxed muscles, more normal movements, the ability to understand and even to cooperate when he's able. So many things we all take for granted, but which are big steps in Ross's recovery.
     Betsy said that there are often times when Ross is doing his range of motion exercises or is up on the tilt table that he'll suddenly look very distressed and begin moaning or even crying. She's convinced it's at those times the frustration of his physical disabilities is really hitting him.
     With awareness comes more understanding. I can't imagine how hard this is for Ross.
     Please continue to keep Ross in your thoughts and prayers. I apologize for the intermittent updates, but my current work schedule interfers with regular contact with Betsy. I'll continue to update as often as I am able--at least a few times each week.

August 22, 2003 9:00 PM--Ross had a quiet day today, though his nurse, Lisa was on duty and managed to put him through a lot of range of motion. Betsy also said she is starting Ross on real food, running stuff through a special blender so it can be given to him through his feeding tube. Her goal is to have him on four meals of regular food a day.
    One really funny/sick thing happened today: Ross's sister Ariel took a call for Ross that turned out to be from a telemarketer. They asked for Ross and Ariel said, "He can't come to the phone now. He's in a coma."
    Long pause. The telemarketer asked, "Well, when should I call back?"
    He's not still in a coma, but I've got to applaud Ariel's quick reply!
    There will not be an update tomorrow night, so please check with the number at the top of this page. Thank you so much for your prayers and healing thoughts for Ross. He's definitely improving, and it's so exciting to share that with all of you.     

August 21, 2003 8:35 PM--When I called tonight, Ross was up on the tilt table and Betsy was working with him, so she called me back a few minutes later. She said he was doing just fantastic. The therapist explained that it's like the memory of being in an upright position is coming back to him. He's much more relaxed and able to raise his head on command even after being up on the table for a long time.
     I've added a photo of Ross on the table, with his speech therapist, David, and Jeremy Nelson, his physical therapist working with him. According to Betsy, Jeremy has commented a number of times on how much more relaxed Ross is, even when up on the table. Another first occurred today when Jeremy was giving Ross a massage that's very precise to certain muscle groups. He had Ross lying on his stomach and was working on his legs. Normally Ross keeps his right arm tucked under him, as it's the one that is often drawn up close to his body. Today, however, it was obvious he wanted it out to the side. Jeremy was able to stretch his arm out a lot more than usual, but it appeared to make Ross more comfortable.
     He's still not consistent with his "yes" and "no" responses to questions, but his parents continue to work with him. Betsy said it's a very exciting time, to see him making so much progress all of a sudden. Please remember Ross in your thoughts and prayers. This has been a long, tough recovery, but it's very definitely that: a recovery. He is showing improvement every day. Thank you so much for sticking with him.

August 20, 2003 8:50 PM--Again Ross had a wide awake night and a sleepy day, though Betsy said that when they did get him up for therapy, he was definitely involved and alert. She thinks his congestion from allergies is keeping him awake at night. Betsy stays with Ross a lot of nights out of concern because of his trouble coughing and clearing his lungs, and said she wonders if he just feels more comforable sleeping during the day with so many people around him. It's got to be terribly frightening for him to have trouble clearing his throat when the drainage gets bad.
     He continues to do well with his therapists, even when he's sleepy. Today Rusty worked with him on raising his left index finger to designate "yes," and felt that he did really well. A lot of the time he lifted his entire hand, but he was obviously trying to follow the instructions.
     Small steps. Lots of them. All forward. Betsy said they're exploring all avenues of communication. Hopefully, Ross will find one he can work with, something that will help him break out of this "locked in" prison that holds him.
     Thank you for your prayers and healing thoughts. It means so much to everyone to know you're still following Ross's recovery and holding him in your thoughts.

August 18, 2003 11:10 PM--Sorry for the late update. I've gotten behind on my work and really had to catch up tonight! I talked to Betsy earlier and she said that even though Ross was sleepy today, he had a great day. They got him up in his chair for speech therapy and he was definitely responsive. He's opening his mouth really well and the speech therapist is quite positive about his progress.  Ross also had a good session on the tilt table. The physical therapist said tonight that he is beginning to see natural patterns re-emerging. Ross is more comfortable now when he's in an upright position. He looks around the room, balances more comfortably and appears to be very relaxed. The therapist also noted that Ross's vision appears to have improved quite a bit. He is focusing close up and far away and tracking really well.
     Betsy sounded really excited about his progress when I talked to her tonight. What she used to describe as "subtle" changes appear much more pronounced. This is a GOOD thing!
     Thank you so much for your prayers and healing thoughts. Please check with Rusty's phone update tomorrow, <707.799.8868> as I will be away on Tuesday night and unable to post. I'll be back with a new update on Wednesday.

August 17, 2003 7:50 PM--Betsy said the last couple of days have been quiet. Lisa, Ross's favorite nurse, was there yesterday and the day went well. He's doing better evert dat and is very alert, though he was tired today. When I called, Betsy said he was watching his favorite movie, "The Usual Suspects," with Katie. When he watches this one, he really stays alert and pays attention.
     Thank you so much for your continued prayers and good thoughts for Ross.      

August 15, 2003 9:00 PM--Betsy said Ross was "really cooking" today. Of course, Katie was there, so he was terribly alert and aware, following her with his eyes wherever she moved about the room. Betsy had spent much of the night in Ross's room, concerned about his cough, and he was awake much of the night, but he really came awake when Katie arrived.
     He's tracking well and showing daily improvement, moving far beyond where he was while in rehab. There was an interesting but bittersweet moment last night. Betsy said Ross was on the tilt table. They'd brought out a full length mirror so he could see himself while the therapists worked with him. Betsy said that, as they were lowering the table to take him off, Ross turned and looked at her with an expression of absolute grief on his face, and began to cry.
     As difficult as this is for his family, it's also a sign of healing. Stage 4 is a period of growing awareness. Therapists have told Ross's parents to expect him to show his frustration and sadness more and more as his awareness grows. Knowing it's a sign of healing is the only thing, though, that makes this bearable for Ross's family and loved ones. They have to keep reminding themselves that the fact he's getting upset is a sign he's getting better.
     There will not be an update tomorrow night, but I'll be back on Sunday. You can, however, call 707.799.8868 for Rusty's evening update. Thank you, everyone, for your prayers and healing thoughts. You are very much a part of Ross's recovery.

August 14, 2003 8:30 PM--Ross was on the tilt table when I called tonight, and Betsy said he was doing really well. He continues to improve, slowly but surely, every day. He's still troubled by allergies and congestion, which is a worry to his parents, of course, because of the risk of pneumonia, but overall his health is excellent and he isdefinitely more alert and aware of his surroundings. The physical therapist mentioned today that Ross appears to be focusing better with both eyes, another sign of recovery. As Betsy said, all the signs are gradual but very significant, and he's looking really good.
     Thank you so much for your prayers and healing thoughts, and also for your thoughtful notes. You are an important part of Ross's recovery.     

August 13, 2003 9:00 PM--Betsy said today went okay. Ross was tired and seemed kind of down, but when the speech pathologist was there he worked really well for an hour. Betsy and the physical therapist thinks he may be depressed, whether from growing awareness of his situation or a combination of medications that can cause depression. They're going to look into changing his medications.
     The aide worked with him and was able to get Ross to really relax his arms a lot. He is definitely showing improvement, albeit slowly.
     Thank you for your healing thoughts and prayers for Ross and his loved ones.

August 12, 2003 9:10 PM--Ross was really sleepy today, but Betsy said he was still a bit toney. The good news is that he slept for a full night last night, from 9:30 PM until 9:00 this morning, not even waking up when she turned him. The tone might be from all the therapy and exercise.
     Nurse Lisa was there today and was able to install a new feeding tube for Ross called a Mic-key. It's a much more effective system than the Foley catheter they've been using and it should be easier to prevent blockages in this one.
     Ross's lab results came in and his sodium levels are normal so they don't have to be so stingy with water. His sodium levels were low last time they had blood work done.
     Betsy said it was a good day overall.
     For those of you who might have tried the link to the wedding page and gotten nowhere fast, I just got it fixed today. I hadn't tested the link and didn't realize it wasn't working, but if you want to see pictures of Ross and his family as well as Rusty performing the ceremony for our son and daughter in law (who are currently somewhere crossing Siberia by train!) you can go to www.katedouglas.com/wedding and the link should work fine.
     Please keep Ross and his loved ones in your thoughts and prayers. Thank you, all of you who follow his progress. It means so much to all of us to know how much you care.

August 11. 2003 9:10 PM--Betsy said Ross did really well today, though he was very tired after his outing yesterday. It made her think about a book she'd read about a man who described coming out of a coma and how everything was so vivid it was almost painful--colors, sensations, things his body could absorb but not temper. One of Ross's therapists said that at the stage Ross is in, he's going to be the same way with emotions. It's like his body is able to experience intense "fright or flight" emotions without a way to mediate or regulate them.
     Ross did really well again today with the speech therapist, opening his mouth wider, swallowing better and responding really well. Betsy said the therapist is wonderful and goes to great pains to connect with Ross. Both Betsy and Rusty have commented on the amazing team of people they have working with Ross now--some of them volunteers, but all of them focused on his recovery.
     They got him up in the tilt table today, at a higher angle and for a longer period of time. He's able to place his feet completely flat to the floor after a few minutes on the table, stretching out his tendons and muscles well beyond what the therapists at Kentfield expected. Betsy said they were talking surgery, but it's obvious Ross won't need it.
     It's an amazing journey, watching Ross's long and slow recovery from such a terrible accident. Betsy told me again tonight, they are so grateful Ross is doing so well, and so appreciative of the many people who are gracious enough to give their time and energy toward his recovery.
     Thank you, all of you, for your healing thoughts, your good wishes and your prayers for Ross and his loved ones.

August 10, 2003 8:45 PM--Ross spent a couple hours at the Sonoma County Developmental Center today where Dr. Scott Wylie had arranged for an informational booth for the Dillon's and for Ross at the Liberty Ride. Betsy said Ross was able to stay for about two hours before they had to take him home. She asked him if he was ready to go, and he nodded that he was. When they got him home, he fell asleep as soon as they got him into bed.
     Betsy said it was really beautiful out there, and she was just sorry they didn't have the opportunity to speak with more people.
     Tonight when I called, Ross was on the tilt table and Rusty was working with him on communicating "yes" and "no." At one point, he raised the table to a more upright degree and Ross immediately let him know he didn't like that a bit, by shaking his head side to side.
     Betsy also said that she was working with Ross using an exercise ball where she puts his legs up over the ball. It lifts his butt up off the bed and when she rocks the ball back and forth, it gives a lateral twist to his legs and back. Today when she was doing it, Ross was turning his head in the direction the ball was turning, working with it. They refer to his therapy as training and exercise and the really tough therapy as intervals...he definitely seems to respond to the cycling analogies.
     Please remember Ross, his family and loved ones in your thoughts and prayers, and thank you all, so much, for continuing to follow his long recovery.

August 9, 2003 9:00 PM--Talked to Rusty and he said he's been busy cleaning out a storage space to clear room in the garage for Ross's therapy equipment. Ross spent an hour on the tilt table today and did really well. Betsy got on the phone and said they also got Ross on his stomach again, and that went well. It allows them to work his back and a whole new set of muscles. He continues with electrical stimulation, range of motion and other therapies on a daily basis. Betsy said they're also beginning to supplement his feedings with "real" food. They've finally gotten the Mic-key feeding tube, but haven't had a qualified person available to put it in. This will allow feedings abdominally without the constant risk of the tube plugging up. What he has now is essentially just a catheter and Betsy said it's awful.
      A friend of theirs brought by an album she'd made for Ross, with pictures in it from the time he was just a baby. Betsy said Ross was really interested in it, especially a photo of the friend's wedding taken when Ross was about eight years old. She said he really concentrated on that one for a long time.
     On a personal note, today my husband and I watched the video of our son and new daughter-in-law, Melanie's, wedding of July 26. Rusty performed an absolutely beautiful ceremony and we are so grateful to him for giving us this wonderful gift. I cannot imagine how difficult it must have been for Rusty, Betsy and Katie to share so much happiness with Doug and me when this past year has been so difficult for them. You really can't put a price on friendship, or on grace and goodness.
     Thank you for your prayers, your kind thoughts and your steadfast concern for Ross. He is showing so much improvement now that it's really exciting. We owe all of you an enormous debt of gratitude.     

August 8, 2003 9:15 PM--Today went well. Lisa was there as nurse today, which means Betsy was able to relax and get some things done. There was some concern Ross might have had a small seizure, but Betsy said she and Rusty are wondering if he might have just been trying to talk. His mouth moved in an unusual manner and after a bit his right hand began to shake. However, he didn't show any other signs typical of seizure.
     During his exercises today, the aide had Ross holding his hands together, something he's not been doing. Betsy also said she got out the world globe and showed Ross where Jon and Mel are on their honeymoon (somewhere in Russia at this point) and he really seemed interested and paid attention to where she was pointing.
    We have a request for suggestions or help from those of you reading the updates. It has been suggested that therapy in water would be really good for Ross. The Dillons have a large hot tub which would work quite well if they could figure out how to get him in and out of it. The lift they use to get him in and out of bed has the wrong "footprint" to work around the hot tub. I suggested the kind of lift used in garages to pull engines from cars, but we figured someone reading this site might have a better suggestion. If you have any ideas of something for moving Ross up out of his wheelchair and into a hot tub, we'd really appreciate your feedback. Email me at [email protected] or Betsy at [email protected].
     On another note, we received a really nice note from Dr. Ed Cooper, the physician who has been so supportive throughout Ross's long rehab, that reminded us just how far Ross has come. Dr. Cooper copied one of my posts from six months ago, when doctors were testing Ross for basic responses to pain and other stimuli, and compared it to the current nightly posts where Ross is so much more involved in the world around him. It takes things like that to remind us just how far Ross has come in a relatively short time, considering the severity of his injuries.
     Thank you, Dr. Ed, and thank you everyone who has stuck by Ross throughout this long period of rehab. Your kindness, healing thoughts and prayers are so important to Ross as well as to his family and loved ones.

August 7, 2003 9:00 PM--Just a brief update tonight, but Betsy was telling me what an effective team they're building to work with Ross. The therapists and aides they have coming in are all so focused on bringing him back, and she said they are all noticing a lot of positive changes in him. He's more focused, more alert and even back to playing the "hacky sack" game with them, something he hasn't done for months. Betsy said they're also using the electrical stimulation on him for eight hours a day.
     Today they were able to get him on his stomach for therapy for the first time since he was hurt, which allowed the physical therapist to work on his back and hamstrings. Ross was also up on the tilt table for almost an hour, at an 80 degree stance. The physical therapist had Ross brace himself on a table close to the tilt table, putting weight on his arm.
     Betsy sounded absolutely ecstatic with the progress he is making. Thank you so much for your kindness, your healing thoughts and prayers for Ross's recovery. It's really neat to be able to report good news like this, knowing how long everyone has been waiting for something positive. Granted, they're not major steps, but a lot of little ones will still take Ross a long way.

August 6, 2003 8:45 PM--I talked to Rusty tonight and he said it was a pretty good day. Ross was sleepy a lot of the day, but that's probably because he had some pretty intensive therapy yesterday.  His feeding tube became clogged during the night and Rusty had to take it apart and clean it out, then re-insert it, something he's not overly fond of doing!  However, they got it taken care of and Ross got through the night fine. He was awake around 4:00 a.m. though and very alert and awake until around ten when he decided to catch up on his sleep. He slept through his range of motion exercises and physical therapy, but was awake for his speech therapy in the afternoon. The speech therapist, a volunteer who has been coming in daily, said Ross is showing real progress and doing better than he expected. Rusty said it's really good to hear positive things from the professionals.
     They got him up on the tilt table today and he was making some sounds, more vocalizations than groans, though nothing that made sense. Still, the sounds are different and hopefully will eventually lead to speech.
     All in all, it was a good day. The speech therapist said he is certain Ross understands what is being said to him, and he's following commands really well. This is a huge step.
     Thank you so much for your healing thoughts and prayers. We owe all of you a wonderful dept of gratitude for your perseverance in sticking with Ross through this long recovery.     

August 5, 2003 9:15 PM--Ross did really well today. Betsy said the changes are subtle, but consistent. He is interacting more with everyone, watching faces, listening. When Katie left tonight, Betsy said Ross really watched her leave. There is a definite sense of his participation in what is happening around him.
     The Dillons received a note tonight from a family in Red Bluff whose son suffered a serious brain injury and has since made an amazing recovery. He told his parents he remembered everything that happened around him but just could not yet talk yet. When you're around Ross, you can't help but think he is totally aware of what's happening around him, but it must be so frustrating not to be able to communicate.
     Ross continues to do well with therapy. The volunteer speech therapist is amazing, according to Rusty and Betsy. There have been so many generous, amazing and talented people who have come into Ross's life since his accident.
     To all of you, thank you for your continuing support, for your prayers and good wishes. You are all part of his recovery.

August 4, 2003 8:45 PM--Ross had a good day today. Betsy said they did range of motion in the morning, got him up for awhile, then down for a nap, then got him back up for the speech and physical therapists. The visits overlapped today for part of the period so the two therapists worked together. Betsy said it's really good to see how far Ross is coming along, and how well he's doing. It is, she said, a very complex process. She does a lot of listening and learning when the professionals are there.
     Katie was her today, and Betsy said that's always good. At one point, Rusty was standing in Ross's way so he couldn't see her, and Betsy said Ross was definitely doing his best to see around his father!
     At another time, Ariel's boyfriend was visiting, and Katie said Ross just sat and glared at him! Always the big brother--still checking out the guys in his sister's life.
      Ross continues to show improvements, slowly but surely. Thank you so much for your continued support, for your prayers and healing thoughts.

August 3, 2003 8:40 PM--Betsy said it was a good day today. There were no aides or nurses, so it was just Betsy, Rusty and Ross. Katie got there this evening. She's got to be so relaxed now the Bar is over...though I imagine waiting for results isn't much fun!
     Betsy said they gave Ross a bath in his fancy new bed and it was really convenient and so much easier than in the old one. This is just a fantastic aide for them. Plus, Betsy said it's much bigger and more comfortable for Ross, and room for someone to crawl in beside him. He's definitely showing improvement ever day and, though he's got a long way to go, it's still so gratifying to see how far he's come.
     Thank you so much for your continuing support, your kind notes in the guestbook and your healing thoughts and prayers.

August 2, 2003 9:00 PM--Betsy said the bed is just fabulous--to be able to move Ross into a sitting position with just the push of a button is great. Makes it easier to feed him when he's sitting upright, and it's a lot easier to turn him, as well. She can firm the mattress, raise the bed to a comfortable height, turn Ross and then return the bed to a comfortable level and firmness. Makes a huge difference in Ross's comfort and will definitely save Betsy and Rusty's backs!
     Ross was up in the tilt table for 70 minutes today. He's able to tolerate the upright position longer each time. Betsy said that by keeping him active and awake more during the day, he's sleeping better at night.
     She's really frustrated with the insurance company. They've totally cut off paying for nurses or aides andwhile Ross does qualify for In Home Support Services, it does not provide enough to cover what Ross needs. There is additional support that Ross qualifies for, but there is said to be a waiting list and Betsy said they do not know how long that will take. It could take years. Even if and when they do get covered by them, it's not going to completely pay for the cost of an aide. I asked Betsy what it costs for nursing and aide care, and she said the nurse is charging $19 an hour for an eight hour shift, and the aides are $144 for a twelve hour shift overnight. At this point, it's all out of pocket, which means they can only afford in-home care a few nights a week. It really doesn't make sense. The state will pay for a nursing home for Ross where he'll essentially be warehoused without therapy, but they balk at covering the minimal amount of care to keep him at home for much less money. Betsy said it's all really confusing, as if the bureaucracy makes it hard to understand the information for some reason.
     Personally, I think what really frustrates Ross's parents is the fact that the woman who hit Ross and totally devastated this entire family has yet to acknowledge her role in his injuries. She has never come forward and apologized and has made no effort to offer any kind of help. Betsy said it's as if she has done this terrible thing and suffered no consequence, while Ross, his fiancée, and his entire family are living with this nightmare on a daily basis. It's not often I hear Betsy say anything negative or discouraging, but her anger comes through loud and clear. As she said, it's difficult to forgive someone who hasn't asked for forgiveness.
     Ross is showing improvement on a daily basis, but it's really tough to look at this young man, still locked behind his injuries, and remember what he was like before he was hurt. Ross was kind and funny and loving, and so damned quick-witted, and his circle of friends is amazing. They remember him as he was and they want him back. Just as we all do.
     Thank you so much for your prayers and good wishes for his recovery. It means more than you can possibly imagine to realize just how many people still care enough to keep Ross in their thoughts and their prayers.     

August 1, 2003 9:00 PM--Today was a wild one! A very generous couple from Healdsburg donated an amazing hospital bed for Ross to use. It's state of the art, designed for comfort for both the patient and the caretaker...it also weighs about 500 pounds! Rusty had assembled a group of guys with muscle, and a few with carpenter's skills...they had to remove a large window in Ross's room along with the frame in order to move the bed inside, but after a lot of maneuvering (and probably a descriptive phrase or two) they managed to get it into Ross's room and all set up.
     Rusty said it's absolutely wonderful. The mattress is longer and wider, but the bed itself takes up less room than the old one. The base of the Hoyer lift they use to move Ross fits under it perfectly and the bed itself is totally adjustable. Rusty said it looks very modern and totally neat and he is so grateful he can barely express himself. Ross is definitely more comfortable on it. The generosity of the owners in sharing this is really wonderful.
     Ross's physical therapist said he has definitely entered Stage 4 on the Los Amigos Scale. As Rusty said, it's exciting to know he's improving, but heartrending to see his agitation and discomfort as he becomes more aware of his situation.
     Tonight, hopefully, he will sleep well. Rusty and Betsy were up with Ross until three a.m. last night, and they're all exhausted after such an eventful day. Thank you so much for your healing thoughts and prayers, and a special thank you to the very generous couple who have made the bed available to Ross. The kindness of strangers is literally mindboggling...and the amazing thing is, once the link is made, they're strangers no longer.    

July 31, 2003 9:15 PM--Bad days are to be expected, and today was Ross's turn. Betsy said he just didn't appear to feel very well. She's got a call in to the doctor, but the therapist suggested Ross may have some sort of stomach bug that's upsetting him, possibly a bacterial infection. However, increased agitation is not necessarily a bad thing, as it's a sign of Ross's progress. Using the "Rancho Los Amigos Scale" for determining the level of coma, the therapist puts Ross at about a four. Clicking on the link above will take you to a site that explains the various levels of the scale, as well as many facets of brain injury.
     When I talked to Betsy, however, Ross was sound asleep and looked very comfortable and peaceful.
     On a lighter note, Katie has completed her exams and intends to sleep through tomorrow...I don't blame her a bit! She said that between 1,500-2,000 people took the test, which is all handwritten. I'm not sure when she'll learn the results.
     Thank you all so much for your continuing support of Ross's long, slow recovery. He is definitely improving, but it's definitely not going to happen fast. He needs your prayers and healing thoughts more than ever.   

July 30, 2003 8:50 PM--Betsy said Ross was still tired today from his two hour session of physical therapy day before yesterday, but when he was awake he was very alert and tracking well. They got him up in his wheelchair and he spent a long time watching Josie the dog fetch over and over and over again. The speech therapist worked with him and a dietician also came by to see how he was doing. She remarked that he was in excellent health with good muscle tone and low body fat.
     Betsy said Ross really tried to stay tuned into the speech therapist, but she arrived late in the afternoon after he'd been up awhile and he was very tired. He did, however, continue to track throughout the session.
     The physical therapist also came by, but Ross was asleep by the time she arrived. She was able to do range of motion exercises with him, however, and remarked on how much more relaxed he was. All in all, it was a positive day for him.
     Betsy hasn't talked to Katie today, but we're assuming all is going well with her exams. Knowing Katie, I can't imagine anything else! She is absolutely amazing.
     Please keep Ross and Katie in your thoughts and prayers, and remember those who work with him to help bring him back. He is doing so much better, but it's not happening without a lot of help and a lot more prayer.

July 29, 2003 9:00 PM--I called Betsy a little bit ago and Jon and Mel had just left, headed for San Francisco International Airport and the first leg of their honeymoon. Ross was up in his chair while they were visiting, and Betsy said he was very alert and tracking well. Melanie really noticed the fact he was watching them very closely while they talked.
     Betsy said Ross had a terrific aide tonight. He was there last night as well, and really appears to take initiative and do what Ross needs.
     He slept most of today, but that was following an intense physical therapy session yesterday. Jeremy, the therapist, will be back tomorrow morning, as will the speech therapist in the afternoon, so it will be a busy day.
     On another note, Katie started her first day of exams at 8:45 this morning and was writing until 5:30 tonight. Hold the good thought for her as she completes the rest of her California Bar exam.

July 28, 2003 10:00 PM--When I called Rusty tonight, he said that Ross copped an attitude today when he saw a new doctor. He'd been alert and responsive all day, until they arrived at the doctor's office when he tilted his head down and promptly fell asleep. No matter what the doctor did to engage him, he refused to cooperate. Betsy tried to explain how attentive he usually is, but it was hard to sound convincing with him completely unresponsive.
     The speech pathologist had gone to the appointment with them and agreed that Ross was aware and alert, but the "subject at hand" did not cooperate. Betsy said he was alert and making eye contact again shortly after the appointment ended.
     Tonight we're asking for your prayers and encouragement for Ross's fiancée, Katie. Tomorrow she begins three days of testing for the California Bar Exam, and I imagine your good thoughts would be much appreciated.     

July 27, 2003 4:30 PM--A wedding that was a year in the planning is over now, and the marriage has just begun. Ross's dad, Rusty, performed our son and daughter-in-law's ceremony and he did a beautiful job. We had hoped Ross could be there, but his parents felt it might just be too much, especially after the excitement of the dinner on Friday night, but from the number of people asking about him and telling tales about Ross, I know he was very much a part of the evening.
     I just talked to Betsy and they were getting him up on the tilt table. She said he does really well on it, though getting him into the right position can be tricky. It's important that his feet be properly positioned in order to stretch out the tendons in his ankles, knees and hamstrings.
     Thank you so much for your thoughts and prayers, and also, a huge thank you to the many people who have made donations to the Dillon Hope Fund in Jon and Mel's name. Your generosity is much appreciated, and will help greatly to offset the cost of nursing care which is no longer provided by insurance.

July 26, 2003 12:10 AM--I apologize for being so late with the update, but tonight was very special and I wanted to share it. My husband and I hosted the rehearsal dinner for our son and future daughter-in-law's wedding party. Ross's dad, Rusty, will be performing the ceremony tomorrrow, and Ross is still Jon's "best man," even though he'll not be able to attend the wedding.
     He did, however, come to dinner tonight, along with Katie, dad Rusty, his sister Ariel, mom Betsy and nurse Lisa. It was Ross's first social outing since his accident and it was absolutely wonderful to have him there. We held the dinner in the outdoor patio at Santi, a terrific restaurant in Geyserville. It was very informal with lots of wine and great food, and Ross was truly a part of the gathering. He watched everything and everyone. The change in him since I last saw him two months ago is amazing. He's much more alert yet at the same time relaxed. There's definitely a sense of his awareness of events going on around him. I'm very thankful his parents were able to bring him all the way up here for the evening. It means so much to all of us that Ross could be part of our celebration, and it was especially important to our son and Melanie that he attend.
      I keep thinking of the importance of friendship, love and compassion in our lives. Watching Jon and Mel and their friends interacting with Ross tonight reminded me once again how privileged we are to know all these wonderful kids.
      Please remember Ross and Katie and all their friends and loved ones in your thoughts and prayers.

July 24, 2003 9:40 PM--Betsy said the tilt table arrived tonight. They got it unpacked and into the house--no small feat--and got Ross up on it for about half an hour at a 40 degree angle. She said he did great. He got his feet down flat on the foot board and, considering how long it's been since he's been upright, did really well.
     He also had a good session with the speech pathologist. They worked on taste and temperature this morning. The SP used ice chips, lemon juice, cinnamon and sugar to test Ross's reaction as well as his ability to swallow. Betsy said Ross was really alert and watched the speech pathologist the whole time...probably wondering what other vile things he was going to have him taste!
     Betsy said he's obviously getting better and is more alert each day. He's been home now for seven weeks, and in that time has definitely shown improvement.
     Tomorrow night Ross will be attending the wedding rehearsal dinner for our son and future daughter in law. If I do an update, it will most likely be quite late, but I'll try and get something posted. Thank you, everyone, for your thoughts and prayers and your healing thoughts. Just the fact Ross will be able to attend the dinner is a testament to your love and support.     

July 23, 2003 8:35 PM--Betsy was sleeping when I called earlier, so I got my report from both Ariel and Rusty. Ross had a good day, and an especially good session with a speech therapist who spent time working with him on swallowing. This is a big step toward Ross eventually feeding himself, adn Betsy said he was really attentive today.
     The speech therapist was a volunteer from the Sonoma Developmental Center, which is just down the road from where the Dillons live. Scott Wylie, Staff Psychologist at SDC, has made a tremendous effort to set up volunteer help for Ross's care. Both Rusty and Ariel said the individual who came today was better than any other speech therapist who has worked with Ross, and his time was entirely "pro bono." He has promised to come daily to work with Ross. Since the insurance company has essentially cut off care for Ross, it's an amazing gift to have professionals ready and willing to work with him.
     Rusty and I were talking tonight about all the good things that have come from Ross's terrible accident. I had become quite cynical over the years about the general condition of the human spirit, but to see so many people offering to help Ross has been absolutely amazing. Thank you, everyone, for your continuing support and prayers for his recovery.

July 22, 2003 8:40 PM--When I called tonight, Betsy said Ross was sitting in his wheelchair, watching the Tour de France on OLN...and he was gripping his bike handlebars in his left hand. The handlebars have become part of his therapy, something familiar to him that can be incorporated into his current "training." Betsy said it was really impressive to watch him sitting there, so intently watching the action on the screen. Before, his eyes would wander and he didn't focus on the program, but tonight it's really caught his attention.
     It's especially comforting for Betsy to see him like this as he has a rather tense and uncomfortable day. She's convinced he's feeling pain, but since Ross is still unable to communicate, it's difficult to figure out what the problem is. After some pain medication, he did relax, though, and Betsy and the aide were able to do range of motion exercises with him.
     Betsy said they are having to pay for any aides now, as insurance is no longer covering in home care, but she is physically unable to move Ross by herself, even with the lift. It's not easy, but with a lot of prayer--and luck--he'll continue to improve to the point where he can help his mom help him.
     Please keep Ross and his loved ones in your thoughts and prayers. Your support is so important to his recovery.

July 21, 2003 9:25 PM--Today went well, though Betsy said they didn't have a nurse, nor will they have any more in the foreseeable future. The insurance company has cut them off completely, claiming that Ross's needs are more custodial than medical. Unfortunately, they're wrong, but it appears impossible to explain that to the insurance establishment.  The Dillons also received a call from their medical liason who said Ross isn't even listed in the medical system for care through Medical. As Betsy said, everyone tries to be very nice, but they're not accomplishing much. Luckily Betsy had friends over who were able to help her get Ross into his chair using the lift. It's not something that is easy to do alone. The big concerns, of course, are the ongoing problems with his feeding tube and the shunt, as well as the seizures he has had, all conditions that are better handled by a nurse.
     However, not all was doom and gloom today. They're using a nebulizer for Ross's allergies, and in the past have had to use a mask that covers his nose and mouth in order to administer the treatment. Today, however, Ross was able to do it by mouth only, which is a big step. Betsy also said his hands and arms were very relaxed and at one point he was sitting in his chair with his arms crossed loosely over his chest. That is a definite sign of neurological improvement. Another change is that, now when there is a room full of people talking, Ross will turn in the direction of each person as they speak.
     I asked Betsy if there was a chance of him going back into rehab, but she and Rusty both seem to agree that he is doing so much better at home and showing such steady improvement, they feel as if he is better off there. Nursing care would definitely help, but they will have to pay for that out of pocket, which is terribly expensive. There is still a little bit of money in the fund, and that, of course, will go toward nursing care. If you have thought about donating, this would be a most welcome time, as the need is great.  Hopefully, with the continued assistance and Ross's constant improvement, such a high level of care won't be needed for long, but it could make a terrific difference in his present condition.
     Thank you, everyone, for your continuing support and prayers for Ross's recovery. It's happening. Slower than we'd all hoped, but still consistent and visible as he re-learns more each day.

July 20, 2003 8:20 PM--Betsy said Ross was pretty quiet today, but this is the first day of rest following a busy week. He's had a lot of range of motion therapy, estim and the trip to Marin General for his CT scan. This evening he's up in his chair. He got kind of uncomfortable awhile ago, but Betsy said they did some exercises they'd been taught to make him more comfortable, and they worked. When I called, they were sitting out on the deck and enjoying the cool evening air. Ross's friend Adam is out from Boston visiting. Adam said he really notices a change in Ross since he last saw him, all of it positive. Betsy also mentioned that the nurse today brought a small ball for Ross and he was holding it in his left hand and curling his fingers around it.
     Thank you, everyone, for your continuing prayers and healing thoughts for Ross.

July 20, 2003 9:00 AM--I'm sorry I couldn't do an update last night, but someone took out a power pole with their car on Dry Creek Road and we just got power back this morning. I called Betsy last night though, and she said Ross had a good day, he was awake and alert, and even turned his head to watch his nurse without her asking him to. He was up in his wheelchair, and also in the beanbag for awhile.
     I'll add more tonight, barring any more power outages. Please remember Ross in your thoughts and prayers.

July 18, 2003 9:45 PM--Ross had a pretty good day today. He was alert and awake, but as Betsy said, "Nurse Lisa was here so he didn't have a choice." She is by far their favorite nurse and is really good with Ross. Betsy is hoping to be able to continue for awhile longer with nursing care, though the insurance company is fighting it. However, there are some definite medical issues the Dillons are dealing with that require a nurse's care, so they're hoping for the best.
     Ross is communicating fairly well, with a nod of his head for yes and blinking his eyes for no. He's also really relaxed--his arms and legs are more relaxed than they've been in the past, most likely attributed to estim and the supplements Betsy is giving him. That's the only real difference since he left Kentfield, other than the fact he's finally home. (Which could also be very important.)
     Thank you so much for your healing thouhts and prayers for Ross's recovery. If you've tried to sign the guestbook and couldn't find the link, I've reparied it on the home page of this site.

July 17, 2003 8:40 PM--When I called Betsy she said the power was off at their place. It's really hot tonight, so I certainly hope it comes on for them soon. (When I checked this afternoon, it was 107 degrees here in Dry Creek Valley)
      The wheelchair tech was able to make some adjustments to Ross's chair today to make him more comfortable. Ross made the trip down to Marin General for his CT scan just great. Betsy said he sat up straight in his chair, holding his head up the whole way down. Coming back he was tired and growing uncomfortable, but that was after a really long day. Betsy was hoping to get an x-ray of the shunt as well as the CT scan, to make certain it was operating okay, but the doctor wouldn't order one. He said they could come back for an x-ray if one was warranted. That's another three hour trip from their home, something that is both difficult and expensive to arrange. I could definitely hear a lot of frustration in Betsy's voice.
     Thank you for your continuing prayers and support for Ross and his loved ones.  

July 16, 2003  9:25 PM--Betsy said today was great. Ross was alert and awake from about seven this morning until he dozed off at one in the afternoon. The nurse did range of motion exercises with him even while he was sleeping, and remarked on how limber he was. Betsy is convinced it's the combination of electrical stimulation and herbal supplements she is giving Ross.
     He goes for a CT scan at the hospital tomorrow to check the condition of the shunt. It's his first outing since coming home on June 7. Betsy said it's a rehearsal for the rehearsal dinner--Ross will be attending the rehearsal dinner for Jon (our son) and Melanie's wedding. Rusty and Betsy felt the wedding might be a bit too stressful, but the much less formal dinner should be a good outing for him.
     It's so good to know Ross continues to improve. I'm hoping to have some new photos of him to post shortly. I think Rusty may have taken some for the website. Thank you all for your continuing support, your prayers and your healing thoughts.

July 15, 2003 8:30 PM--I just got off the phone with Betsy, and the first thing I realized I was thinking about was the subtlety of recovery. So many things Ross is beginning to accomplish are really very subtle changes, but so very important. This morning Betsy said she was preparing his medications, and he really watched what she was doing. She said she would show him each one and explain what it was for, he'd very seriously study it and contemplate what she showed him, and he watched everything she did. A few weeks ago, he might have stared blankly at her while she did the same thing.
     Another thing Betsy mentioned was a little thing she used to say to the kids when they were small, that has since become a "family" thing: "I love you and I like you and I think you're neat."
     Today she tried repeating the phrase, then having Ross confirm whether or not she was saying it correctly. She said he was definitely responding. They also did exercises and Betsy had a phone call from the physical therapist who was checking on Ross. The PT told her to keep track of the time periods where Ross was really alert and interacting with her, as those periods now will definitely begin to lengthen. The conversation made Betsy recall a meeting she had with Ross's doctor at Herrick back in February, when he cancelled all future physical therapy because he said Ross wasn't responsive enough to warrant it. So many people have given up on Ross, but many times that number have continued to believe he will get better.
     He's lucky to count so many of you among that group. Thank you for your prayers and for keeping Ross and his loved ones in your thoughts throughout the day.

July 14, 2003 9:40 PM--I apologize for the late update, but my computer locked up and decided it was in charge for awhile tonight. When I talked to Betsy a couple hours ago, she said Ross had a pretty good day, though he slept a lot. He was uncomfortable some of the day, possibly with a stomach upset due to diet, or maybe a bug. She wasn't sure. He was doing better tonight, though, watching the Tour on television. Betsy said they're trying some different medications for his allergies, hoping to reduce the amount of nasal congestion he's been having. It's been a horrible year for allergies, most likely due to the late rains, and Ross has been suffering just like a lot of the rest of us.
     He continues to do well overall, and is definitely more alert. Thank you all for your continuing support, your healing thoughts and prayers.

July 13, 2003 8:25 PM--Ross spent most of his day in bed. Betsy said he was uncomfortable much of the day with some stomach upsets, and was a lot more toney than he has been. He was, however, very alert. She said at one point she had her arm around his shoulders and was trying to reposition him, when Ross lifted his head and shoulders as if to help her. She had him do it two more times, and said it was obviously something he was doing of his own volition.
     Later, when Betsy and the nurse used the lift to move Ross into his wheelchair, he shifted to an awkward position, which meant they were not able to place him in the chair in a manner that would be most comfortable for him. Betsy said she noticed a bit later that he had managed to shift his position into one that was more comfortable. It wasn't a big move, but a move none the less. She said it would be such a big step if Ross were able to comfortably position himself, whether in bed or the wheelchair.
     His improvement, though measured in fractions, is consistent and positive. Betsy said he's getting regular treatments of electrical stimulation and range of motion exercises as well as other therapies.
     I have to comment on a wonderful and most generous offer that was made to Ross today. A Healdsburg resident read one of Chris Coursey's columns in the Press Democrat and contacted me regarding a state-of-the-art hospital bed they had available. It's specially designed for patients who are in bed much of the time and helps prevent pressure sores and other problems associated with long-term bed rest. It's totally adjustable and should work perfectly for Ross. This Good Samaritan even offered to have it delivered to the Dillon's for Ross's use. It's just mind-boggling, sometimes, how fantastic people can be. Sort of wears down that cynical mindset so many of us have developed in this day and age!
     Thank you, everyone, for your healing thoughts and prayers for Ross's recovery. He is improving daily, albeit slowly, but it's all progress in the right direction.

July 12, 2003 9:00 PM--When I called tonight, Betsy said Ross was in his beanbag chair with an aide rubbing his head and shoulders, with Betsy and her friend working on the rest of him. He was relaxed and obviously enjoying the attention...of course, who wouldn't? He had a good day today. Their favorite nurse was on duty, and Betsy said things always go so well when she's there.
     I'm hoping Rusty will send me some new photos of Ross. If so, I'll try and get them posted later on this evening. Thank you for your thoughts and prayers, and for being there for Ross and his family and loved ones.

July 11, 2003 9:00 PM--It was a busy day today for Betsy. She met with a representative who was supposed to provide respite care for Ross, but decided they couldn't because of his age. So far, in ever case, he's either too young or too old. There are few provisions made for young adults. One thing that was mentioned was the Olmstead Act which is supposed to have a section that is aimed at the disabled who are Ross's age. Betsy said she needs to do some research. I found a few websites about it, but if anyone who reads the updates is familiar with the Olmstead, please contact Betsy at [email protected].
     Ross was quiet today, but definitely very alert. He also did two things that were new: he was able to stick his tongue out beyond his teeth. A small sounding thing, maybe, but not something he's been able to do. Betsy said he also was moving his right shoulder in such a way as if he were trying to get more comfortable. That was a first, and Betsy is hoping it will progress to him being able to help adjust his own position.
     He's still having some problems with allergies, but he's able to cough and clear his lungs. However, Betsy said they still all jump when he coughs! Over all, though, he is doing so much better since coming home.
     Thank you so much for keeping Ross in your thoughts and prayers. I really believe a lot of Ross's progress can be attibuted to his amazing support group.

July 10, 2003 8:20 PM--Betsy said Ross did really well today. He had a good night. He did appear uncomfortable when they put him in his wheelchair around noon, so Betsy said they switched him to the beanbag chair that's in the living room. He fell asleep in it and ended up sleeping there for three or four hours today--obviously very comfortable.
     The nurse worked with him this afternoon and when I called he was wide awake. Katie was there. She's almost through with her scheduled classes to prepare for taking the Bar (July 28-30) but obviously still has a lot of preparation for the exam.
     Betsy said they only have one more week of nursing care covered by insurance. They'll have to start paying out of pocket for care after that, as they really need the help in order to keep Ross home where he is finally beginning to show improvement.
     Please keep all of them in your thoughts and prayers. For Ross's recovery, his parents as they care for him, Katie and her Bar exam coming up in just a couple of weeks. Thank you so much for staying with Ross though this long recovery.

July 9, 2003 8:10 PM--When I called tonight, Betsy said Ross was up in his wheelchair, watching the Tour, holding on to the handlebars from his bike. Someone suggested letting him hold the bars to see if the familiarity of them would jog his memory in any way. Betsy said he was grasping the bar in his left hand, just in the position he would be in if he were riding.
     Today was better. He was more alert, less toneook she'the physical therapist came and worked with him, Betsy said Ross began to cry. The therapist explained that it was because he is so frustrated at being "locked in" and mper. Ono respond normally. When Betsy asked for an explanation, the PT said when the brainstem is involved in injury, the cognitive process in the brain are still functioning, but because of the brainstem injury, the body is unable to respond. It's a matter of finding a way to unlock Ross and help him regain full awareness and normal responses before he can fully recover. The therapist did say she has seen definite improvement in Ross over the past three weeks since he's been home.
     Thank you for your healing thoughts and prayers for Ross's recovery. Thank you, too, for your kind and thoughtful notes and offers of help. You are all appreciated so very much.

July 8, 2003 8:00 PM--Today, Betsy said, was sort of a "down" day. Ross was very sleepy, not too responsive, his muscles fairly toney and he's obviously having trouble with his allergies. I had to agree with Betsy when she said there occasionally have to be down days, but it doesn't make them any easier to handle. The speech therapist gave Betsy some exercises to do with Ross in order to stretch the number of visits out as long as possible. Insurance only covers just so much. I'm sure the worry about cost is part of what has Betsy so concerned, but getting funds from the insurance company is a constant concern.
     I'll have to go with Scarlett O'Hara and assume that tomorrow will be a better day. Please keep Ross in your thoughts and prayers, and remember his mother, father and fiancée as well. This is not an easy time.

July 7, 2003 8:10 PM--Betsy said they didn't have a nurse until 3:00 this afternoon because none was available, but then Ross's feeding tube became clogged and she said they'd better send someone, even if it was a supervisor. Amazingly, the agency found a nurse...
     Ross was very alert and awake, tracking well and following conversation. Even the occupational therapist who hasn't been that positive about Ross's recovery was surprised by his progress. He spent time in his chair outside on the deck and also watched part of the Tour on TV. Betsy said he really did great today.
     They work with him all day long, doing range of motion and other exercises, all meant to relax his muscles and stimulate his mind. Every day since Ross has been home he's progressed. At some point, he has to break through the locks that are holding him back.
     Thank you, everyone, for your thoughts and prayers for his recovery.    

July 6, 2003 8:10 PM--Ross was tired today but still very alert. When I called, he was up in his wheelchair, though Betsy said he was really comfortable yesterday in the beanbag chair. He had a new nurse today and she was pleasantly surprised with how well he was doing. She'd expected him to be much less responsive.
     Betsy said she played a video tape today that Ross's friends, our son Jon and his fiancée Melanie made for Ross, of his friends and favorite places in Boston. The first time he saw it a few months ago, he didn't respond very much, but this time Betsy said he really watched it and paid attention. It's so great to know he's showing improvement, even though it's slower than any of us would like.
     Thank you all for your healing thoughts, your prayers, and most of all for the fact you continue to follow Ross's progress and care about his recovery. You are so important to all of us.

July 5, 2003 10:25 PM--Probably the most significant thing today was the fact that when Ariel and the nurse, Lisa, were standing on either side of Ross and talking, he turned his head from side to side as they spoke back and forth. One more sign of his increasing awareness and responsiveness.
     Betsy said he's definitely more alert. They put him in a bean bag chair today, using the lift, and he was able to stay in it for a long time and be pretty comfortable. Plus, Betsy said they were able to do range of motion exercises while he was in the chair. The beauty of it was being able to adjust his position with pillows and such to keep him comfortable.
     He spent time watching the television while in the chair, and Betsy said he's definitely more relaxed. I asked if she sees continuing progress since he's been home, and she said most definitely.
     Thank you, everyone, for your continuing support, your kind thoughts and healing prayers for Ross and his loved ones.

July 4, 2003 9:10 PM--When I called tonight, Betsy and Rusty had Ross out on the deck in his wheelchair. Betsy said he is so much more responsive now, and doesn't seem to have suffered any ill effects from last night's seizure. It was a grand mal, and lasted at least five minutes, but they've readjusted his medication and hope that will prevent future seizures.
     They had an aide there throughout the night, which allowed Betsy some time to sleep. She's trying to figure out a schedule that will take advantage of whatever in home care they're able to get, but it's very expensive to have people there all the time. The most important thing, now, though, is that Ross is showing progress every day.
     Thank you for your thoughts and prayers and your healing thoughts for Ross, his family and his fiancée.

July 4, 2003 9:45 AM--QUICK UPDATE:  Just got an email from Betsy. She wrote: Ross seems okay. We think the doctor reduced the Klonapin (one of his medications that also has a sedating effect) too quickly yesterday. The aide, new as he was for Ross, seems to be good. I got more sleep even though I was up for an hour and a half at three because Ross was distressed.
     I'll do a regular update tonight, but wanted to let everyone know Ross was okay.

July 3, 2003 8:45 PM--I'll just have a brief post tonight, but may add more later. While Betsy and I were talking, Ross had a seizure and she hung up to take care of him. They've cut back on some of his medications in an attempt to find lower doses that will achieve the effect they need, but until they find a perfect balance, Ross may experience more seizures. Betsy said she thought he also had a small one earlier today. The problem is, the medications make him so sleepy that he's not nearly as alert and reponsive as they know he can be.
     Tonight there is an aide who will stay overnight, hopefully giving Betsy some much needed rest. Sleeping in two hour increments and then having to be awake most of the day is beginning to really wear on her.
     If I hear from Betsy later, I'll add more to the update. In the meantime, please keep Ross in your thoughts and prayers. This has been such a tough year, but he's definitely a fighter. Your support is very important to his recovery.

July 2, 2003 8:50 PM--Today went well. Betsy said Ross has shown more improvement in the three weeks he's been home than in all the time at rehab. He's more responsive, more alert and just seems more content. They're cutting back on some of his medications, with the doctor's supervision, as a number of them have sedating effects. The doctor has written to the insurance company to see about more nursing care, at least for another couple of weeks while Ross adjusts to the changes in his meds.
     Betsy said the therapists who come to work with Ross are uniformly supportive and positive about his recovery. They're got lots of excellent ideas of things that may help Ross and Betsy said it's really nice to be hearing such great comments.
     One therapist commented that Ross's problems with tone are what are keeping him "locked in," and that if they can just break through the tension and tone he can begin to progress cognitively. Betsy said the estim is definitely helping in that respect, as is the regular therapy.
     They had a visit from a social worker form the Sonoma Valley Home Health division and she had some excellent ideas and advice. Betsy sounds as if things are really looking up.
     Thank you so much for your continuing support of Ross and his loved ones. It's so easy, as busy as our lives are, to forget about the ones who count on our healing energy and prayers. I am constantly amazed by the fact that you have stayed with Ross throughout his very long recovery. You are a truly inspiring group of friends, and very much appreciated.

July 1, 2003 8:45 PM--Betsy said they got an air cleaner for Ross's room to help with his allergies. It's so hard to control dust and pollens when you live in the country, but this should help. He had an excellent nurse today, but Betsy said their caseworker told them they were going to start "weaning" them from in home nurse care for Ross and would only authorize aides next week. Betsy's hoping the doctor will be able to intervene, as they still feel a need for a regular nurse for at least a few hours a day. They've been looking into private care, however, and have a man coming to stay for a twelve hour shift for one night to see how that works.
     Ross had a restful day today, though he was awake a lot during the night. He had therapy today--Betsy said she is really impressed with the speech therapist who works with him. Insurance will cover only 60 therapy visits, so Betsy is trying to learn all she can from the therapists who work with Ross.
      They bought a bean bag chair for him and will use the lift and sling to get him in and out of it. Hopefully, it will be more comfortable than the wheelchair for longer periods of time. Betsy is also looking into getting a foam bed to use when she's doing therapy with Ross. The hospital bed he's in is narrow and she said she worries about him falling off when they're working with him.
     There was some good news today--the insurance will pay for part of the cost of the tilt table for Ross. Donations to the Hope Fund will cover the rest. The tilt table is preferred over a standing frame because Ross will be supported from behind with it, which means they can work up to keeping him in it for up to a couple hours. It's really good for his circulation and general muscle tone to be able to remain upright, plus it allows them to work on straightening his Achilles tendons, which are shortening from lack of use.
     Thank you so much for your healing thoughts and prayers, and also for your donations, which are helping Ross's parents provide  better care for him now that he's at home.     

June 30, 2003 8:15 PM--Betsy's definitely learning to deal with bureaucracy as she works her way through the muddled pathways of what is supposed to be our healthcare system. She said that, today, even with a nurse there to help, she felt as if she was treading water all day.
     Ross still has his hours turned around, staying awake more at night and sleeping during the day. I wonder if the normal, comfortable sounds of home during the daytime are just so relaxing for him that they're more conducive to sleep than the quiet of the house at night?
     Betsy said they're learning more physical therapy techniques to help him, and are especially grateful to Jeremy Nelson's suggestions and demonstrations last night. The exercises he taught them really seem to work well, and Ross appeared very relaxed today after PT.
     Please remember Ross and his loved ones in your thoughts and prayers. Thank you, everyone, for your very nice notes and your contributions to the Hope Fund.

June 29, 2003 9:05 PM--I just talked to Rusty. He said Ross was awake most of the night and slept most of the day, but at least his chest is clear and he's sounding really good when he has to cough. Coughing effectively is really important because it means he's able to keep his lungs clear.
     Jeremy Nelson, a physical therapist, has been at the Dillon's house for a couple of hours tonight showing the family different therapy techniques they can use. Rusty said he's very good and the various therapies appear to be really effective.
     They're looking into leasing a tilt table so they can stand Ross up. Rusty said he's been unable to find one used, and they're very expensive to buy--close to $2000--but they are an effective tool in his recovery.
     Thank you for your continuing support, good wishes and prayers for Ross's recovery.

June 28, 2003 7:45 PM--I asked Betsy if she and Rusty were out in front to watch the riders on the Terrible Two go by this morning, but she said she slept right through it. I imagine that getting up every two hours all night long makes it difficult to crawl out of bed when the opportunity for more sleep exists. My husband and I live on Dry Creek Road near the half way point at Lake Sonoma, and there were certainly a lot of hot and tired riders going by around noon today. We hope all of you had a safe and fun ride...and imagine you'll be sleeping well tonight.
     Ross continues to show improvement. I asked Betsy what all she attributed it to, and she is convinced it's the combination of food supplements she gives him daily (calcium, magnesium and B vitamins) regular sessions of e-stim and the fact he is finally home in familiar surroundings.
     Their favorite nurse was on duty today. Betsy said she always has marvelous suggestions of things to do to make Ross more comfortable. One of her ideas today was to get him a bean bag chair so that he can be upright and more comfortable than in the wheelchair. Ross is definitely more relaxed and his muscles are not nearly so tight.
     Thank you, everyone, for your continuing support, for your healing thoughts and prayers. You are all very important to Ross's recovery.     

June 27, 2003 8:45 PM--Betsy said Ross had a rough night, but she thinks it's probably due to abdominal discomfort from the antibiotics he's taking. When I called around eight, though, he was sleeping in his wheelchair and appeared to be comfortable. Betsy did say the nurse noticed that when he was sleeping earlier, his right arm, which is usually tucked tightly against his chest, was completely relaxed. One more sign of healing.
     Betsy said they're looking into adding a track apparatus to the ceiling which they can use to lift Ross from his bed to the shower for bathing. But, like she said, hopefully by the time they get it installed, he'll have improved enough they won't need it.
     Please keep Ross and his loved ones in your thoughts and prayers.

June 26, 2003 8:25 PM--Ross's sister Liz, her husband Warren and children Andrew, Stephanie and Natalie, are out from North Carolina visiting Ross. Betsy said it's been really great for Ross to have so much activity around. The kids climb up on his bed and keep him company. One really exciting thing happened when seven year old Stephanie went in to talk to Ross and he reached his hand out to her. Responses like that are so positive. Even the nurse who was with him today said she felt he would eventually come through this. Her own son had a brain injury from a motorcycle accident, so she's definitely familiar with the problems Ross is facing.
     Betsy said she turned the TV on for him and he seems to enjoy watching shows like Seinfeld...I can't help but think how much better it is for Ross to be in his familiar home environment, surrounded by his loved ones.
     Thank you so much, everyone, for keeping Ross in your thoughts and prayers.     

June 25, 2003 8:20 PM--Just talked to Betsy. She said Ross had a pretty good day today, though he's  been plagued with allergies and post nasal drip. It's hard for him to cough when he's in bed, even if it's raised,--he does better in the wheelchair. The nurse today checked his lungs and was concerned he might have some congestion, so he's taking some antibiotics as a preventive measure.
     Tonight, Katie and Ross's sister Ariel were giving Ross a haircut.
     Betsy said Ross seems stronger since coming home and is definitely doing better. She's tired from lack of sleep, and is hoping to, at some point, arrange for an aide to come in and at least be there to help turn Ross for at least one of the times during the night. It's really important for them to get staffing worked out.
    Thank you for remembering Ross and his loved ones in your thoughts and prayers.

June 24, 2003 9:40 PM--Today went fairly well. Betsy said they had an RN today, so they were able to change Ross's feeding tube, which really needed to be done. Betsy also said he's very relaxed today, not nearly so toney as he's been. A neighbor of theirs, a psychiatrist, stopped by to visit. She hadn't seen Ross for quite some time and commented on how alert and attentive he appeared. Betsy said it was good to know someone else had noticed his progress...it comes in small increments, but still he shows regular improvement.
     Thank you for keeping Ross and his loved ones in your thoughts and prayers.

June 23, 2003 9:10 PM--Ross had a small seizure last night. Today, his muscles were quite toney and he slept most of the day. However, Betsy said that tonight when she and Ariel got him up into his wheelchair his muscles were very relaxed, he was alert and tracking well. While I was talking to Betsy, Rusty and Ariel wheeled Ross out onto the deck so he could see the sunset. Once again I am reminded how wonderful it must be for him, to finally be home after a year of hospitals and rehab.
     Ross, his family and his fiancee have been through so much this year. Thank you, everyone, for your continuing support and your prayers for his recovery.

June 22, 2003 7:30 PM--Betsy sounded tired and frustrated today. They were unable to get a nurse for the day, and instead had an aide provided, who will also be there tomorrow. Unfortunately, the aides are not allowed to give medications, and with Ross taking meds at least a dozen times in a twenty-four hour period, it means Betsy has to  administer them herself throughout the day and night hours. Ross was fairly uncomfortable part of the day, though she said he was sleeping when I called a few minutes ago.
     Hopefully, they'll get things worked out so that the promised nurse will be there by Tuesday. Please keep Ross and his loved ones in your thoughts and prayers.

June 21, 2003 8:50 PM--Betsy said today was a good day. Katie was there, and Ross always does well when she's around. (I've added a couple of new photos of Ross and Katie to the page that Ross's dad sent to me.) I apologize if the webpages look different, but for some reason, all the fonts changed the last time I uploaded to the site, and I didn't pick it up until this morning. Hopefully, everything has been corrected.
     Anyway, Ross was up until 11:00 last night and Betsy said it was just neat to have him "part of the action" with everyone. Today he had his really terrific nurse again, so he got a lot of range of motion exercises.
     Thanks to everyone for your continuing prayers for Ross, his family and his fiancée.     

June 20, 2003 9:00 PM--It's so good to call for an update, now that Ross is home. His mom and dad sound so much more upbeat than when he was in rehab or at the nursing home. Betsy said their favorite nurse was there today--they really love her and said she is so good with Ross. They also had terrific therapists visit. They're from Sonoma Valley Home Health and are covered, for now, by Ross's insurance. Betsy said they're just fantastic and are are really doing a lot to help Ross. Today the physical therapist showed Betsy some new moves that help reduce tone in his muscles, working him from side to side and loosening up the tightness. Ross is also responding well to the speech therapist, but the main thing is that he is really aware when Katie is there. She is staying over tonight and relieving Betsy of the night shift. Ross needs to be turned every two hours, which isn't easy when Betsy also has to be up with him all day.
     Please remember Ross, his family and Katie in your thoughts and prayers.

June 19, 2003 9:40 PM--Betsy said today was definitely filled as full as could be. She met with a therapy team the case manager at Kentfield found for Ross, a physical therapist, occupational therapist and speech therapist who will be able to come in and work with Ross. One important thing she leaned is that the increased muscle tone is not necessarily a bad thing. The occupational therapist explained that the muscle tone in brain injured patients often gets worse before it gets better. It's definitely been worse with Ross, but it could very well be a sign his tone patterns are changing
     They also met with a therapist who is very familiar with traumatic brain injured patients who will help put together a team to work with Ross when his insurance coverage ends, though Betsy said Ross has been approved for two more weeks of nursing care. In the meantime, they'll be looking for an aide, possibly someone who can live in and help care for Ross at a later date.
     In the meantime, Ross had a good day. Betsy took him outside in his wheelchair and found him a shady spot while she threw a toy for the dog. Ross had an occupational therapy session and over all is doing well.
     As Betsy said, it's going to work out well, having him home.
     Please remember Ross and his family and fiancée in your thoughts and prayers.

June 18, 2003 8:00 PM--When I called Betsy she said Ross was awake and sitting in his wheelchair while she prepared dinner. He had a rough time with his allergies today, but was able to cough and clear his throat without any problem. He also had a couple of tough hours last night, sweating profusely and requiring some Tylenol before he could sleep. Betsy said he's done much better today. He was fairly tight this morning, but his mom thinks it could be a combination of all sorts of things, including the fact he's still going through the transition from hospital to home.
     Betsy's trying to get the insurance company to cover more in-home nursing care. Though Ross qualifies for coverage under Medi-Cal, and she was told there would be no problem with getting in-home care once they left Kentfield, it hasn't been that simple. Simply speaking, there are no funds currently available from the state to pay for a nurse. The part time care he's been getting has been paid for by his insurance. If they don't agree to cover more cost, the Dillons will need to pay for it out of pocket. The insurance from the driver who hit Ross was gone the first week. Your donations to the Hope fund are much appreciated, and will go toward Ross's care. (My husband and I were really proud of our son and future daughter-in-law when they requested donations to the Dillon Hope Fund in lieu of wedding gifts.)
     Thank you for your healing thoughts and constant prayers for Ross's recovery, and thanks, too, for the wonderful notes you've posted in the guestbook and sent privately. You can't imagine how much it means to know that, even after more than a year, there are still so many terrific people who care how Ross is doing and who are actively taking part in his recovery.  


June 17, 2003 10:15 PM--Got my update from Rusty tonight as Betsy was sleeping. Getting up every two hours throughout the night to turn Ross is taking its toll, but with any luck, they'll eventually be able to get an aide to come in and cover nights.
     There was another new nurse today and Rusty said she was terrific. Did range of motion with Ross and got him up in his wheelchair for a couple of hours. Rusty said he definitely makes himself heard when he's tired of sitting in the chair. There was also a visit from the home service worker from Medical. As Rusty said, the levels of bureaucracy are a bit overwhelming, but they definitely need more hours of care for Ross, which would still be cheaper than having him in a full-care nursing home.
      A physical therapist came by to work with him, and Rusty said they were able to use eight hours of electrical stimulation on him. The device is placed on his arms, alternating the very light charge, and causes the brain to produce more dopamine. The most obvious result at this point is the fact Ross can freely turn his head from left to right and also completely arched his back while stretching, something he's not been doing.
     For those of you who live in the area, please try to visit if you can. Not only is it good for Ross to have visitors, but for his family as well.
     Thank you, everyone, for your continuing prayers and healing thoughts.     

June 16, 2003 8:10 PM--I just talked to Betsy and she said today went well. Ross was very relaxed and also quite alert. He did become distressed while in his wheelchair, but Betsy blames a lot of that on the fact he is becoming more cognizant of his physical and mental condition. It's got to be terribly frightening for him as he becomes more aware of the world around him and his much-altered place in it.
     Michael Zaretsky, a friend of Ross's from when he worked at Liberty Mutual in Boston, came to visit. Betsy said that was really special. Visitors are especially important, now that Ross is at home and away from the constant activity and humanity of the rehab center.
     He had an excellent nurse today, someone who was very comfortable talking to him and working with him. Also, Ross's sister Ariel is home from college, and knowing how close those two have always been, I imagine that's really going to mean a lot to Ross.
     Please keep him in your thoughts and prayers and remember his family and fiancée as well. You are a very important part of Ross's recovery.

June 15, 2003 8:10 PM--Betsy said today went well. They had their favorite nurse there. She has sons close to Ross's age and seems to really understand what he needs. Betsy said that today she had found a comfortable old shirt of his and put it on him, and was playing his favorite CDs. Plus she constantly talks to him.
     He appears much more relaxed, turning his head from side to side, especially moving it to the left, tracking, following whoever is in the room. Betsy said they continue to use the e-stim, and she is grateful to Karen Masterson, mother of Kelly, a young woman who was badly brain injured but who is showing remarkable recovery with the use of electric stimulation, for her insightful comments on how to place and use the e-stim device.  It is so important for Ross's parents to hear from people who have been through this, especially those who can show how well their children/significan others are now doing.
     Betsy said the best thing of all is having Ross at home. They are free to work with him in the manner which they feel is most beneficial, it's a quiet and relaxing atmosphere, and it seems to be working for Ross.
     Thank you, all of you, for your continued support of Ross and his family, for your thoughts and good wishes for his recovery.

June 14, 2003 10:00 PM--Another good day. When I talked to Betsy tonight, she said Ross was sleepy, but he'd been up in his chair for about three hours. As Betsy said, it's obvious there's a lot of healing going on inside.
     She's been doing a lot of research on various forms of therapy being doing with brain injured patients and is amazed at the many different approaches. There are so many  theories on how to treat injuries such as Ross's. With luck and a lot of persistence, hopefully they'll finally find what really works well for him. They're still searching for an acupuncturist, since that's something that definitely appears to help Ross with his tight and toney muscles.
     Please remember Ross in your thoughts and prayers throughout the day. Thank you so much for caring, and for sticking with him throughout this long recovery.

June 13, 2003 10:30 PM--Sorry for the late update. We had a house full here for dinner tonight, but it's always good to have family around. Our son Jon and his fiancée Melanie are home for the weekend. They spent the day, along with Mel's brother Cody, visiting with Ross and his family. Jon and Cody took Ross for a wheelchair ride around the yard and Betsy said it was just a wonderful day, having so much company. Chris Coursey from the Press Democrat also stopped by. He has written a couple of wonderful columns about Ross. I have links to the columns he's done on the home page of this site.
     Betsy said they had a great nurse there today. She was able to take over and give Betsy and Rusty a chance to run some errands. Betsy said she also managed to work out some of the problems with the insurance company, so that, in case a nurse isn't available, an aide will be approved.
     Ross seems less toney, something Betsy attributes to the vitamin and mineral suppliments she is giving him, along with the electrical stimulation.
    Thank you so much for your continued presence in Ross's life. Your prayers and healing thoughts are so important to his recovery.

June 12, 2003 8:50 PM--Betsy said today was really very frustrating because the service that provides nurses called this morning to inform them no one was available. Finally an aide was sent out, but she'd only been there a few hours when the service called back and said she had to leave, as Ross was not approved for an aide, only for the non-existent nurse. At least Betsy said he got his bath while the aide was still there.
     He was sleeping a lot today, but he did get a massage and, though his muscles remained very toney, he was quite alert and responsive when awake. Betsy said his stomach problems appear to have settled down, and she's guessing it might be due to the added supplements and juice she's including in his diet.
     Betsy did have one request she wanted me to add to the update: if anyone can direct her to a website or a book with definitive information about food and/or vitamin supplements for brain injured patients, she would really appreciate the information. Write directly to Betsy at [email protected] .
     Please remember Ross and his family and fiancée in your thoughts and prayers, and thank you so much for continuing to follow his recovery.

June 11, 2003 7:15 PM--Betsy said today was another good day. The nurse arrived at 11:00, which gave Betsy time to run some necessary errands, but according to the nurse, Ross was very alert, tracking well and actually turning his head to follow her movements. His muscles are more relaxed and he's obviously much happier at home. Betsy said they're using the electrical stimulation in an alternating pattern on both arms, and it definitely appears to be helping with the muscle contracture that was such a problem at the rehab center. Since it affects his brain, it's an "all over" effect on his tight muscles.
     Also, Betsy said they've been really aggressive with Ross's range of motion exercises, something they couldn't always do with the tight schedule he was on while in rehab.
     Thank you all, so much, for your continuing prayers and good wishes for Ross's recovery. I am feeling really hopeful now that he's back home. I imagine Ross is, as well.

June 10, 2003 8:40 PM--Today went really well. A different nurse, but she was excellent and really good with Ross. Betsy said it's so neat to have someone come in who can just take over and really work with him. She also helped Betsy figure out the lift they use to move Ross in and out of bed--some of the stuff that's supposed to help can be really tricky if you don't use it correctly! They did range of motion exercises with him and are busy doing online searches for more information on supplements and such. Betsy said she's reading about all kinds of things that might help Ross, and also appreciates the many notes she's received from people with suggestions and information.
     Thank you for keeping Ross and his loved ones in your thoughts and prayers, and thank you, too, for the notes you've sent supporting him. You can't imagine how much your kind and thoughtful words mean to all of us.

June 9, 2003 8:00 PM--Betsy said Ross slept most of the day, but he was awake most of the night. She and Rusty did some pretty aggressive exercises with him yesterday evening, and she said she didn't think about the fact it might stimulate him enough to keep him awake most of the night. She finally gave him some Tylenol around four a.m. and he finally got some sleep.
     He had a really wonderful nurse today, who just took over so Betsy could get a few things done. She's still trying to figure out a schedule, especially when Ross is, at this point, so severly disabled that she is caring for him most of the day and night. She did say, however, that he was very relaxed and his muscles not nearly so tight as they've been.
     Last night he was very alert, tracking and turning his head to follow Betsy and Rusty's movements about the room. Knowing he is capable of that and so much more is a pretty terrific incentive. Thank you for keeping Ross in your thoughts and prayers, and please remember his parents as they embark on this new part of the journey toward Ross's recovery.

June 8, 2003 7:00 PM--Today went really well, though Betsy said she still feels as if she's in transition. I think the enormity of the amount of care Ross requires is daunting, but from the improvement he is already showing, it's going to be worth it. He was much more relaxed today, his arms not so toney and tight.  
     They've begun adding certain supplements to his diet, including Co-enzyme Q10 and various vitamins and herbs they've researched.They're also using electrical stimulation via a unit placed on his arm, which stimulates the median nerve and causes the brain to produce more dopamine. It's an experimental procedure that has been used with amazing results on other coma patients, but this is the first time Betsy said they've been able to openly use e-stim on Ross. They know it works and has helped him a lot in the past, but doctors have been unwilling to permit its use. (That's not to say it hasn't been used.)
     This is a whole new chapter in Ross's life. Thank you so much for continuing your prayers and healing thoughts for Ross. I really believe he is in the best setting now for his recovery.

June 7, 2003 4:30 PM--Ross is home! Finally, one year and four days since his accident, he is back in his own room in Glen Ellen. Betsy said he did fine riding home in the van, his color was good and right now, he is sleeping peacefully in his room while Katie gets things organized. Betsy said it might just be her own wishful thinking, but she was sure he looked more relaxed as soon as he got home. The dog recognized him and Betsy said Ross was watching the dog when she came running to the van.
     There is an aide at the house with them today, until 9:00 PM tonight. Ross needs to be turned and his position moved every two to three hours, so that will be Betsy's job. They're still not sure what the nursing schedule will be, but Betsy said someone is scheduled to come at one on Monday.
     Thank you so much for your thoughts and prayers for Ross. If you live in the area, Betsy said she is sure Ross would love to have company. You can email her at TrntyRest@cds1.net